BILL NUMBER: S1133
TITLE OF BILL :
An act creating the New York Stem Cell Research Institute
This bill establishes the New York Stem Cell Research Institute, sets
forth procedures for the appointments of the New York state stem cell
board, and establishes guidelines for the distribution of grants for
the advancement of stem cell research.
SUMMARY OF SPECIFIC PROVISIONS :
Sections 1 through 3 set forth the legislative intent and establishes
the New York Stem Cell Research Institute. The institute shall have
the following purposes:
- Make grants and loans for stem cell research, for facilities, and
for other vital research opportunities to realize therapies,
protocols, and/or medical procedures that will result in the cure for,
or substantial mitigation of, major diseases, injuries and orphan
- Support all stages of the process of developing cures, from
laboratory research through successful clinical trials
- Establish appropriate regulatory standards and oversight bodies for
research and facilities development.
- Ban the use of any funds from the institute to be used for research
involving human reproductive cloning.
Sections 4 through 6 establishes the New York stem cell board. This
board shall consist of nineteen appointed members: five from the
Governor, 3 from the temporary president of the senate, three from the
speaker of the assembly, two each from the minority leaders in each
house, and two from the state comptroller and two from the attorney
general. Board members terms shall be for six years.
The board shall elect a chairperson and vice chair. Such individuals
shall meet the following criteria:
- a documented history in successful stem cell research advocacy;
- experience with state and federal legislative process;
- not currently employed by a prospective grant recipient;
- experience in establishing governmental standards; and
- direct knowledge and experience in bond financing.
Section 7 sets forth public and financial accountability standards,
including an independent financial audit for review by the state
Section 8 establishes guidelines for conflicts of interest.
Section 9 establishes standards for patent royalties and license
Section 10 gives preference to New York suppliers.
Section 11 is the effective date.
EXISTING LAW :
Millions of children and adults suffer from devastating diseases or
injuries that are currently incurable, including cancer, diabetes,
heart disease, Parkinson's disease, spinal cord injuries, blindness,
Lou Gehrig's disease, HIV/AIDS, mental health disorders, multiple
sclerosis, Huntington's disease, and more than seventy other diseases
Recently, medical science has discovered a new way to attack chronic
disease and injures. The cure and treatment of these diseases can
potentially be accomplished throughout the use of new regenerative
medical therapies including a special type of human cells, called stem
cells. These lifesaving medical breakthroughs can only happen if
adequate funding is made available to advance stem cell research,
develop therapies, and conduct clinical trials.
Unfortunately, the federal government is not providing adequate
funding necessary for the urgent research and facilities needed to
develop stem cell therapies to treat and cure disease and serious
injuries. This critical funding gap currently prevents the rapid
advancement of research that could benefit millions of New Yorkers.
This legislation would establish the New York Stem Cell Institute, to
make grants for opportunities in the area of stem cell research.
LEGISLATIVE HISTORY :
2007-08: S.2923 - Referred to Health
2005-06: S.5932 - Referred to Health
FISCAL IMPLICATIONS :
LOCAL FISCAL IMPLICATIONS :
EFFECTIVE DATE :
Immediately upon the approval of the New York stem cell research bond
act of 2009.
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