2013-J5002
Sponsored By
(R, C, IP) Senate District
text
2013-J5002
LEGISLATIVE RESOLUTION memorializing Governor Andrew M. Cuomo to
proclaim May 11-18, 2014, as Fibromyalgia Awareness Week in the State of
New York
WHEREAS, An estimated 10 million people in the United States, and an
estimated 3-6 percent of the world's population, have been diagnosed
with Fibromyalgia, (FM), an illness for which there is yet no known
cause or cure; and
WHEREAS, A chronic syndrome that is increasing at alarming rates,
Fibromyalgia causes debilitating widespread pain and fatigue, appears to
have a genetic component, and occurs in women, men, and children of all
ethnicities; and
WHEREAS, Patients with Fibromyalgia often have to learn to live with
widespread pain throughout their bodies, extreme fatigue, sleep disor-
ders, stiffness and weakness, migraine headaches, numbness and tingling,
and impairment of memory and concentration; and
WHEREAS, It often takes an average of five years to receive a diagno-
sis of Fibromyalgia, and medical professionals frequently are inade-
quately educated regarding the diagnosis and treatment of Fibromyalgia;
and
WHEREAS, A 2007 study found that FM patients spend between $100-$1,000
per month above insurance costs to see a healthcare provider; costs in
the United States are estimated between $12-14 billion per year and
account for loss of 1-2% of the nation's productivity; according to a
survey of 1,168 FM patients, 25% had received disability payments, and
total healthcare costs may be 2-3 times higher than patients without FM;
failure to diagnose and adequately treat Fibromyalgia has deep financial
implications for patients and for the healthcare system; and
WHEREAS, According to a fact sheet provided by the National Fibromyal-
gia Association, 90% of physicians agree there is a need for more physi-
cian oriented information, and 82% of physicians agree that FM is diffi-
cult to treat with currently available tools; use of complementary and
alternative medicine is 2 1/2 times higher in FM patients; and
WHEREAS, Increased awareness and expanded knowledge of the realities
of life with Fibromyalgia will allow the community at large to better
support people who struggle with the challenges of this chronic pain
disorder; and
WHEREAS, A nonprofit charitable organization, the National Fibromyal-
gia and Chronic Pain Association (NFMCPA) has joined together with other
groups around the country, including the International Institute For
Human Empowerment, Inc., based in New York State, to promote Fibromyal-
gia awareness and support, including improved education, diagnosis,
research and treatment; and
WHEREAS, The International Institute For Human Empowerment, Inc.,
(IIHE) a non-profit organization in the Capital District of New York, is
the sponsor of various Fibromyalgia awareness events, as well as, the
Select Empowerment Seminar report: "Fibromyalgia: Awareness, Advocacy,
and Action," encouraging the medical community, patients, employers,
government health and human rights agencies, educators, and caregivers,
to work together to support and improve the lives of Fibromyalgia
patients; and
WHEREAS, The International Institute For Human Empowerment, through
the leadership of its Founder and Executive Director Sue Shipe, PhD,
recently initiated a Fibromyalgia Task Force with the stated intentions:
to secure support for a new edition of Fibromyalgia: Awareness, Advocacy
and Action, of which 5,000 reports have already been distributed local-
ly, nationally, and internationally; to create a scholarship for Fibro-
myalgia patients to access complementary therapies which are not covered
by insurance; and to provide continued public conferences regarding new
research findings in Fibromyalgia; to address the concern that the aver-
age time to Fibromyalgia diagnosis is five years, the Fibromyalgia Task
Force will provide Legislative awareness, and seek Legislative action,
to improve physician education by requiring medical schools in New York
State to provide Fibromyalgia education for physicians; and
WHEREAS, This Legislative Body recognizes the research of Integrated
Tissue Dynamics (INTIDYN), located in Rensselaer, New York, and its
Founders Frank L. Rice, PhD, and Philip J. Albrecht, PhD, for their
internationally recognized research findings regarding increased periph-
eral nerve fibers and interrupted regulation of blood flow in FM
patients; this research is part of a Fibromyalgia study based at Albany
Medical College; based upon implications from these findings, medical
researchers are looking at new ways to treat Fibromyalgia and many other
pain syndromes; the work of Dr. Rice, Dr. Albrecht and INTIDYN has been
recognized in national and international professional pain publications
and medical universities; and
WHEREAS, Medical Research in the Capital District of New York is
making significant progress in the area of Fibromyalgia and chronic
pain, and deserves the support of the people of New York; and
WHEREAS, The community's focus on Fibromyalgia and its impact on
patients' lives will help guarantee hope for a better future for people
with Fibromyalgia; and
WHEREAS, This Legislative Body recognizes the needs of those chron-
ically ill people who suffer from Fibromyalgia, and urges all of our
citizens to support the search for a cure and assist those individuals
and families who deal with this devastating syndrome on a daily basis;
now, therefore, be it
RESOLVED, That this Legislative Body pause in its deliberations to
memorialize Governor Andrew M. Cuomo to proclaim May 11-18, 2014, as
Fibromyalgia Awareness Week in the State of New York; and be it further
RESOLVED, That copies of this Resolution, suitably engrossed, be tran-
smitted to The Honorable Andrew M. Cuomo, Governor of the State of New
York; the International Institute For Human Empowerment, Inc.; Inte-
grated Tissue Dynamics; and the National Fibromyalgia and Chronic Pain
Association.
actions
-
09 / May / 2014
- REFERRED TO FINANCE
-
20 / May / 2014
- REPORTED TO CALENDAR FOR CONSIDERATION
-
20 / May / 2014
- ADOPTED
Resolution Details
- Law Section:
- Resolutions, Legislative
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