K94

Commemorating the 21st Annual Hunter's Hope Foundation Day of Hope and Prayer for Children on February 14, 2019

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K94



Assembly Resolution No. 94

BY: M. of A. Burke

COMMEMORATING the 21st Annual Hunter's Hope
Foundation Day of Hope and Prayer for Children on
February 14, 2019, in conjunction with their annual
day to raise awareness and support for
Leukodystrophies on February 16, 2019

WHEREAS, It is the sense of this Legislative Body to recognize that
the quality of life for children in the communities across this great
State of New York is enriched by the concerned and dedicated efforts of
those organizations and individuals of distinction whose singular
purpose is the care and welfare of children; and

WHEREAS, This Legislative Body is moved to commemorate the 21st
Annual Hunter's Hope Foundation Day of Hope and Prayer for Children on
February 14, 2019; and

WHEREAS, On Saturday, February 16, 2019, Hunter's Hope will host a
day of activities and celebration for local families at the ADPRO Sports
Training Center; and

WHEREAS, The Hunter's Hope Foundation was established in 1997, by
Professional Football Hall of Fame member and former Buffalo Bills
quarterback, Jim Kelly, and his wife, Jill, in honor of their son,
Hunter (February 14, 1997 - August 5, 2005) who was diagnosed with
Globoid-Cell Leukodystrophy, more commonly known as Krabbe Disease; and

WHEREAS, The Kellys started Hunter's Day of Hope and Prayer for
Children on February 14, 1998, to celebrate the shared Valentine's Day
birthday of their son, Hunter James Kelly with his father, Jim Kelly;
and

WHEREAS, Hunter Kelly was born on February 14, 1997, and four months
following his birth, was diagnosed with Krabbe Leukodystrophy, an
inherited, fatal, nervous system disease; and

WHEREAS, Hunter Kelly lived to be eight and a half years old, and
lost his life to Krabbe Disease on August 5, 2005; the Kellys have
continued with Hunter's Day of Hope and Prayer for Children as a
celebration of love, prayer and thanksgiving for all children
everywhere; and

WHEREAS, Hunter's Day of Hope and Prayer for Children is a special
time for families to come together and spend time having fun while
enjoying music, dancing, games, face painting, and refreshments; at the
conclusion of the event, there is a special time of prayer for all
children; and

WHEREAS, Hunter's Day of Hope and Prayer for Children is a free
event open to people of all ages, races and walks of life; the
celebration has continued successfully for 21 years and continues to
have dozens of sponsors throughout the Western New York Community; and

WHEREAS, In recent years, the event has welcomed approximately 4,000
children and parents annually and has been held in the ADPRO Sports
Training Center; and

WHEREAS, The Hunter's Day of Hope and Prayer for Children fulfills
one of the primary goals of Hunter's Hope, to remind parents how blessed
they are to have the gift of children; and

WHEREAS, Jill and Jim Kelly hope that through sharing Hunter's
story, they inspire in parents an appreciation of all children and
thankfulness for these precious gifts of life; and

WHEREAS, Hunter's Hope Foundation is the Kellys lifelong commitment
to increase public awareness of Krabbe Disease and other
Leukodystrophies thus increasing the probability of early detection and
treatment; to gather and provide current, functional information and
service linkages to families of children with Leukodystrophies; to fund
research efforts that will identify new treatments, therapies and
ultimately, a cure for Krabbe Disease and other Leukodystrophies; and to
establish an alliance of hope that will nourish, affirm and confront the
urgent need for medical, financial and emotional support of family
members and those afflicted with Leukodystrophies; now, therefore, be it

RESOLVED, That this Legislative Body pause in its deliberations to
commemorate the 21st Annual Hunter's Hope Foundation Day of Hope and
Prayer for Children on February 14, 2019, in conjunction with their
annual day to raise awareness and support for Leukodystrophies on
February 16, 2019; and be it further

RESOLVED, That a copy of this Resolution, suitably engrossed, be
transmitted to the Hunter's Hope Foundation, Orchard Park, New York.

actions

  • 11 / Feb / 2019
    • INTRODUCED
  • 11 / Feb / 2019
    • ADOPTED

Resolution Details

Law Section:
Resolutions, Legislative

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