GOLDEN SENDS LETTER TO FDA TO EXPEDITE REVIEW OF INVESTIGATIONAL DRUG ETEPLIREN, FOR TREATMENT OF DMD
Albany- State Senator Martin J. Golden (R-C-I, Brooklyn) today is announcing that the New York State Senate yesterday adopted Senate Resolution J. 243, which he introduced, recognizing the Scarso Family from Brooklyn, and their son Pietro, for their efforts in their fight to find a cure for Duchenne Muscular Dystropy (DMD).
Senator Golden has also sent a letter to Dr. Russell Kats of the Food and Drug Administration urging him to expedite the review of the investigational drug ETEPLIREN for treatment of Duchenne Muscular Dystrophy.
In his remarks on the floor of the State Senate, with Pietro, parents Dayna and Manni and brother Nico seated in the gallery, Senator Golden stated, “We are here today because Pietro has been diagnosed with Duchenne Muscular Dystrophy, the most common and lethal childhood genetic disorder in the world. Our mission is to bring awareness and gain support for Pietro’s Fight, the fight to find a cure for DMD. I present this resolution and pledge that we will not stop fighting.”
The family has launched a website, www.pietrosfight.org and will be hosting a series of benefits in the next couple of weeks to raise funds and awareness.