LEGISLATIVE RESOLUTION honoring the MHE Research Foundation for its
dedicated work in finding a cure for Multiple Hereditary Extoses

WHEREAS, It is the sense of this Legislative Body to commend those
illustrious individuals and organizations that work to serve the health
care needs of citizens of the State of New York; and
WHEREAS, Attendant to such concern, and in full accord with its long-
standing traditions, this Legislative Body is justly proud to honor the
MHE Research Foundation for its dedicated work in finding a cure for
Multiple Hereditary Extoses; and
WHEREAS, A nonprofit 501-c organization, the MHE Research Foundation
provides support to researchers, physicians and families dealing with
Multiple Hereditary Extoses; and
WHEREAS, The five point mission of the MHE Research Foundation is to
REACH, advance and support: Research, to help support researchers in
order to one day discover a treatment/cure for MHE; Education, to
provide clinical information/guides benefiting both families and physi-
cians; Advocacy, bring awareness about this disease to the world; Clin-
ical, to help provide resources to families enabling them to locate
medical care they require; and Hope, the research being conducted on MHE
and the informational resources will bring a better quality of life to
the families affected by this disease; and
WHEREAS, Also known as Hereditary Multiple Extoses or Multiple Osteo-
chondroma, Multiple Hereditary Extoses is a genetic bone disease in
which benign cartilage-capped bone tumors grow outward from the meta-
physes of long bones, growth plates or the surface of flat plates
throughout the body; and
WHEREAS, The severity of Multiple Hereditary Extoses varies widely,
some patients may have as few as two tumors and others may develop
hundreds of tumors; surgery, physical therapy and pain management are
currently the only options available to patients and many struggle with
chronic pain, fatigue and mobility problems throughout their lives; and
WHEREAS, On September 13, 2009, the MHE Research Foundation will hold
the Multiple Hereditary Extoses Funtasia Research Banquet at the El
Caribe Country Club in Brooklyn, New York, where it will honor Dr. John
P. Dormans with the Humanitarian Scientific Achievement Award; and
WHEREAS, The success enjoyed by the MHE Research Foundation is in
direct correlation to the efforts of the many individuals who have
supported its development over the years, including its National Direc-
tor, Sarah Ziegler, and the Chair for Funtasia, Susan Eaton; and
WHEREAS, It is the sense of this Legislative Body that when individ-
uals and organizations of such noble aims and accomplishments are
brought to our attention, they should be celebrated and recognized by
all the citizens of the great State of New York; now, therefore, be it
RESOLVED, That this Legislative Body pause in its deliberations to
honor the MHE Research Foundation for its dedicated work in finding a
cure for Multiple Hereditary Extoses, fully confident that it will
continue to enjoy the sparkling success which has so characterized its
past; and be it further
RESOLVED, That a copy of this Resolution, suitably engrossed, be tran-
smitted to the MHE Research Foundation.