LEGISLATIVE RESOLUTION commending the Hermansky-Pudlak Syndrome Network
upon the occasion of its 20th Annual Conference, held in March of 2013,
in Uniondale, New York

WHEREAS, It is the sense of this Legislative Body to recognize that the
quality and character of life in the communities across New York State
are reflective of the concerned and dedicated efforts of organizations
and individuals who devote themselves to the welfare of the community
and its citizenry; and
WHEREAS, Attendant to such concern, and fully in accord with its long-
standing traditions, it is the sense of this Legislative Body to commend
the Hermansky-Pudlak Syndrome Network upon the occasion of its 20th
Annual Conference, held in March of 2013 in Uniondale, New York; and
WHEREAS, The Hermansky-Pudlak Syndrome Network was founded in 1992,
and incorporated in 1995; its mission is to gather and disseminate
information, to promote awareness and research and to provide support to
their members; and
WHEREAS, The Hermansky-Pudlak Syndrome Network develops educational
materials, pamphlets, slides, and articles to help both families and
professionals understand the needs created by this syndrome, and
publishes a newsletter twice yearly highlighting new information and
achievements; and
WHEREAS, The Hermansky-Pudlak Syndrome Network Conference adopted its
theme of "Dare to be Rare!"; and
WHEREAS, The Hermansky-Pudlak Syndrome Network holds a Family Confer-
ence for three days in Long Island, New York, in which participants who
are actively involved in the research, spend time with the public and
explain the research findings for the year; and
WHEREAS, This Legislative Body has come together to recognize the
people of the Hermansky-Pudlak Syndrome Network who tirelessly work to
improve the quality of life of their members; and
WHEREAS, It is the custom of this Legislative Body that those who
enhance the well-being and vitality of their community and have shown a
long and sustained commitment to excellence certainly have earned the
recognition and applause of all the citizens of this great Empire State;
now, therefore, be it
RESOLVED, That this Legislative Body pause in its deliberations to
commend the Hermansky-Pudlak Syndrome Network upon the occasion of its
20th Annual Conference; and be further
RESOLVED, That a copy of this Resolution, suitably engrossed, be tran-
smitted to the Hermansky-Pudlak Syndrome Network.