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This entry was published on 2018-04-27
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SECTION 97-PPPP*2
Sickle cell disease research and education fund
State Finance (STF) CHAPTER 56, ARTICLE 6
* § 97-pppp. Sickle cell disease research and education fund. 1. There
is hereby established in the joint custody of the commissioner of
taxation and finance and the comptroller a fund to be known as the
"sickle cell disease research and education fund".

2. Such fund shall consist of all revenues received pursuant to
section four hundred four-y of the vehicle and traffic law, and all
other moneys appropriated, credited or transferred thereto from any
other fund or source pursuant to law. Nothing contained in this section
shall prevent the state from receiving grants, gifts or bequests for the
purposes of the fund as defined in this section and depositing them into
the fund according to law.

2-a. On or before the first day of February each year, the comptroller
shall certify to the governor, temporary president of the senate,
speaker of the assembly, chair of the senate finance committee and chair
of the assembly ways and means committee, the amount of money deposited
in the sickle cell disease research and education fund during the
preceding calendar year as the result of revenue derived pursuant to
section four hundred four-y of the vehicle and traffic law and from
grants, gifts and bequests.

2-b. On or before the first day of February each year, the
commissioner of health shall provide a written report to the temporary
president of the senate, speaker of the assembly, chair of the senate
finance committee, chair of the assembly ways and means committee, chair
of the senate committee on health, chair of the assembly health
committee, the state comptroller and the public. Such report shall
include how the monies of the fund were utilized during the preceding
calendar year, and shall include:

(i) the amount of money disbursed from the fund and the award process
used for such disbursements;

(ii) recipients of awards from the fund;

(iii) the amount awarded to each;

(iv) the purposes for which such awards were granted; and

(v) a summary financial plan for such moneys which shall include
estimates of all receipts and all disbursements for the current and
succeeding fiscal years, along with the actual results from the prior
fiscal year.

3. Moneys of the fund shall be expended only for sickle cell disease
research projects and sickle cell disease education projects approved by
the department of health in New York state. As used in this section, the
term "sickle cell disease research project" means scientific research
approved by the department of health into the causes and/or treatment of
sickle cell disease, and the term "sickle cell disease education
project" means a project approved by the department of health aimed
toward educating the general public about the causes, symptoms, and
treatment of sickle cell disease.

4. Moneys shall be payable from the fund on the audit and warrant of
the comptroller on vouchers approved and certified by the commissioner
of health.

5. To the extent practicable, the commissioner of health shall ensure
that all moneys received during a fiscal year are expended prior to the
end of that fiscal year.

* NB There are 2 § 97-pppp's