senate Bill S4601A

Creates the New York autism spectrum disorders treatment, training and research council and provides for the powers and duties of the council

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Bill Status


  • Introduced
  • In Committee
  • On Floor Calendar
    • Passed Senate
    • Passed Assembly
  • Delivered to Governor
  • Signed/Vetoed by Governor
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actions

  • 15 / Apr / 2013
    • REFERRED TO FINANCE
  • 08 / Jan / 2014
    • REFERRED TO FINANCE
  • 11 / Feb / 2014
    • AMEND AND RECOMMIT TO FINANCE
  • 11 / Feb / 2014
    • PRINT NUMBER 4601A

Summary

Creates the New York autistic spectrum disorders treatment, training and research council and provides for the powers and duties of the council.

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Bill Details

Versions:
S4601
S4601A
Legislative Cycle:
2013-2014
Current Committee:
Senate Finance
Law Section:
Executive Law
Laws Affected:
Add Art 41-A ยงยง908 - 908-b, Exec L
Versions Introduced in Previous Legislative Cycles:
2011-2012: S2150A
2009-2010: S6880

Sponsor Memo

BILL NUMBER:S4601A

TITLE OF BILL: An act to amend the executive law, in relation to
creating the New York autism spectrum disorders treatment, training
and research council and providing for the powers and duties of the
council

PURPOSE: This bill would expand and enhance treatment, training and
research programs serving those persons diagnosed with Autism and
Autism Spectrum Disorders (ASDs).

SUMMARY OF PROVISIONS:

Section 1. Intent.

Section 2. Enacting Clause.

Section 3. Amends the Executive Law by adding Article 41-A as follows:

* Section 908. Definitions

* Section 908-a. Creates the New York Autism and Autism Spectrum
Disorders Treatment, Training and Research Council:

I. Purposes:

(a) To develop a coordinated New York State Policy and Plan with
respect to treatment, training and research;

(b) To review State agency initiatives for consistency with the State
Policy and Plan;

(c) To provide a continuing forum for discussion related to the
development and implementation of the State Policy and Plan; and

(d) To take enumerated steps to expand and coordinate treatment,
training and research.

2. Organization: 28 members

(a) 13 Ex Officio: Commissioner of the Department of Health,
Commissioner of the Department of Labor, Commissioner of the
Department of Education, Commissioner of the Office of Children and
Family Services, Commissioner of the Office of Mental Health,
Commissioner of the Office for People with Developmental Disabilities,
Commissioner of the Office of Temporary and Disability Assistance, the
Superintendent of the Department of Financial Services, Chancellor of
the State University of New York, Chancellor of the City University of
New York, Chair of the Council on Children and Families, Chair of the
Commission on Quality of Care and Advocacy for Persons with
Disabilities, Executive Director of the Disabilities Planning Council

(b) Seven Appointments by the Governor: Two members must represent
not-for-profits


(c) Six Recommendations by the Majority: The President Pro Tem and the
Speaker would each recommend three members, at least one expert, at
least one family member

(d) Two Recommendations by the Minority: Senate and Assembly Minority
Leaders would each recommend one member.

*Section 908-b. Outlines the functions, powers and duties of the
Council:

Community Forums: Community forums must be held every five years-in
various locations throughout the State-to allow patients, family
members, service providers, and expert researchers to contribute to
the State Policy and Plan. State Policy and Plan: The Council must
submit an annual report to the Governor and Legislature that includes
information, findings and recommendations regarding: (a) Coordination
of services (b) Early identification and intervention (c) Lifelong
service delivery (d) Family support (e) Increased dissemination of
information (f) Coordination of research (g) Financing training,
treatment and research in the State (h) Statistical analyses.

Implementation of the State Policy and Plan: Except where prohibited
by law, rule or requirement, the State Policy and Plan is binding upon
member state agencies. State agencies must promulgate regulations and
otherwise act to give effect to the State Policy and Plan.

NYCARD Facilities: The Council shall select and designate regional New
York Centers on Autism and Related Disabilities:

(a) The Council must establish criteria for selection and designation

(b) The Council must accept applications from not-for-profit, academic
and research agencies; and within 18 months:

* Designate as NYCARD Facilities:

* Federal Studies to Advance Autism Research and Treatment (STAART)
Network programs located within the State

* Cody Center for Autism and Developmental Disabilities at Stony Brook
University

* Center for Autism and Related Disabilities at the University at
Albany

* Expand current NYCARD Facilities located in or around:

Albany, Buffalo, New York City, Northern Metropolitan New York,
Rochester

* Create one or more NYCARD Facilities in or around:

Binghamton, Plattsburgh, Potsdam, Poughkeepsie, Syracuse

(c) NYCARD Facilities must provide training, referral and information
for parents, educators, medical professionals and other service
providers. Where feasible, NYCARD facilities must also provide


treatment based services, including case consultation and clinical
services.

Research: NYCARD Facilities, as well as organizations receiving
federal or non state grant funds for research, may receive grants for
the enhancement of activities already being undertaken by such
organizations.

JUSTIFICATION: As noted in section 1 of this bill, Autism and Autism
Spectrum Disorders (ASDs) affect approximately one in every 110
children. Given the high rate of incidence, which has increased
dramatically in recent years, the Centers for Disease control and
Prevention consider ASDs an "urgent public health concern."

In its 2010 report, the New York State Interagency Task Force on
Autism (Task Force), identified "five pressing needs" of the growing
population of New Yorkers diagnosed with ASDs: coordination of state
services, early identification, lifelong service delivery, increased
dissemination of information, and coordination of research efforts.

This bill creates a centralized state entity to address the current
and future needs of individuals and families affected by ASDs.
Further, it integrates many of the Task Force's proposals. Finally,
this bill not only provides for more efficient and effective research,
but also allows the Council flexibility to adapt to any information
yielded as a result.

LEGISLATIVE HISTORY: S. 4601 of 2013 - Finance Committee. S. 2150-a
of 2011-12 - Rules Committee.

FISCAL IMPLICATIONS: Budget appropriations made in support of this
proposal.

EFFECTIVE DATE: 90 days.

view bill text
                    S T A T E   O F   N E W   Y O R K
________________________________________________________________________

                                 4601--A

                       2013-2014 Regular Sessions

                            I N  S E N A T E

                             April 15, 2013
                               ___________

Introduced  by  Sens.  GRIFFO, ROBACH -- read twice and ordered printed,
  and when printed to be committed to the Committee on Finance -- recom-
  mitted to the Committee on Finance in accordance with Senate  Rule  6,
  sec.  8  --  committee  discharged, bill amended, ordered reprinted as
  amended and recommitted to said committee

AN ACT to amend the executive law, in relation to creating the New  York
  autism spectrum disorders treatment, training and research council and
  providing for the powers and duties of the council

  THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:

  Section 1. Intent. The legislature  hereby  finds  and  declares  that
autism  spectrum  disorders, hereinafter ASDs, currently affect approxi-
mately one in 110 children and are considered to be  an  "urgent  public
health concern" by the Centers for Disease Control and Prevention.
  The  legislature  further  finds that New York state has not responded
sufficiently to this crisis. In its 2010  report,  the  New  York  state
Interagency  Task  Force  on  Autism, hereinafter Task Force, identified
five primary needs of  the  growing  population  of  New  York  citizens
affected  by ASDs: coordination of state services, early identification,
lifelong service delivery, increased dissemination of  information,  and
coordination of research efforts. First, as a collaborative effort of 11
independent state agencies that each serve individuals impacted by ASDs,
the Task Force itself exemplifies the need for coordination of research,
treatment  and  training  responsibilities. Second, while the Task Force
determined that early identification and intervention  were  crucial  to
minimizing  the symptoms and impact of ASDs, it reported that only eight
percent of pediatricians routinely screen for ASDs and approximately  30
percent  of  children  with  ASDs  do not receive the early intervention
services provided by the New York State  Department  of  Health.  Third,
recognizing that the thousands of children diagnosed with ASDs will soon
age out of the state's educational system, the Task Force noted a dearth

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                      [ ] is old law to be omitted.
                                                           LBD10302-03-4

S. 4601--A                          2

of  post-secondary  training and transitional services. Fourth, the Task
Force determined that individuals and families affected  by  ASDs  would
benefit  from  a  centralized clearinghouse of relevant information, and
called  for  the  provision of user-friendly access to such information.
Finally, the Task Force reported that  collaboratively  determining  the
direction of future ASD research would best utilize available public and
private funding.
  The  legislature  therefore  declares  that  there is a need to expand
treatment, training and research with regard to ASDs  --  including  the
enhancement of efforts to improve access to, and the efficacy of, needed
services, support and treatment.
  S  2.  This  act  shall  be  known, and may be cited, as the "New York
autism spectrum disorders treatment, training and research act".
  S 3. The executive law is amended by adding a new article 41-A to read
as follows:
                              ARTICLE 41-A
                   NEW YORK AUTISM SPECTRUM DISORDERS
                TREATMENT, TRAINING AND RESEARCH COUNCIL
SECTION 908. DEFINITIONS.
        908-A. NEW YORK AUTISM SPECTRUM  DISORDERS  TREATMENT,  TRAINING
                 AND RESEARCH COUNCIL; PURPOSE AND ORGANIZATION.
        908-B. FUNCTIONS, POWERS AND DUTIES OF THE COUNCIL.
  S 908. DEFINITIONS. WHEN USED IN THIS ARTICLE:
  1.  "AUTISM SPECTRUM DISORDER" OR "ASD" MEANS A NEUROBIOLOGICAL CONDI-
TION THAT INCLUDES AUTISM, ASPERGER SYNDROME, RETT'S SYNDROME, OR PERVA-
SIVE DEVELOPMENTAL DISORDER;
  2. "FAMILY" MEANS THE PARENT OR LEGAL GUARDIAN OF AN INDIVIDUAL  DIAG-
NOSED WITH AN AUTISM SPECTRUM DISORDER; AND
  3.  "PATIENT"  MEANS  AN  INDIVIDUAL DIAGNOSED WITH AN AUTISM SPECTRUM
DISORDER.
  S 908-A. NEW YORK AUTISM SPECTRUM DISORDERS  TREATMENT,  TRAINING  AND
RESEARCH COUNCIL; PURPOSE AND ORGANIZATION. 1. THERE SHALL BE WITHIN THE
EXECUTIVE  DEPARTMENT  THE NEW YORK AUTISM SPECTRUM DISORDERS TREATMENT,
TRAINING AND RESEARCH COUNCIL, HEREINAFTER COUNCIL, WHOSE PURPOSES SHALL
BE TO:
  (A) DEVELOP A COORDINATED NEW YORK  STATE  AUTISM  SPECTRUM  DISORDERS
TREATMENT,  TRAINING  AND  RESEARCH  POLICY  AND PLAN, HEREINAFTER STATE
POLICY AND PLAN, WITH RESPECT TO THE PROVISION OF SERVICES  TO  PATIENTS
AND THEIR FAMILIES;
  (B)  REVIEW  STATE  AGENCY  INITIATIVES FOR THEIR CONSISTENCY WITH THE
STATE POLICY AND PLAN;
  (C) PROVIDE A CONTINUING FORUM FOR DISCUSSION RELATED TO THE  DEVELOP-
MENT AND IMPLEMENTATION OF THE STATE POLICY AND PLAN; AND
  (D)  TAKE  THE STEPS ENUMERATED HEREIN TO EXPAND AND COORDINATE TREAT-
MENT, TRAINING AND RESEARCH.
  2. THE COUNCIL SHALL BE COMPRISED OF TWENTY-EIGHT MEMBERS AS FOLLOWS:
  (A) THE COMMISSIONER OF THE DEPARTMENT OF HEALTH, THE COMMISSIONER  OF
THE  DEPARTMENT OF LABOR, THE COMMISSIONER OF THE OFFICE OF CHILDREN AND
FAMILY SERVICES, THE COMMISSIONER OF EDUCATION, THE COMMISSIONER OF  THE
OFFICE  OF MENTAL HEALTH, THE COMMISSIONER OF THE OFFICE FOR PEOPLE WITH
DEVELOPMENTAL DISABILITIES, THE COMMISSIONER OF THE OFFICE OF  TEMPORARY
AND DISABILITY ASSISTANCE, THE SUPERINTENDENT OF FINANCIAL SERVICES, THE
CHANCELLOR  OF  THE  STATE UNIVERSITY OF NEW YORK, THE CHANCELLOR OF THE
CITY UNIVERSITY OF NEW YORK, THE CHAIR OF THE COUNCIL  ON  CHILDREN  AND
FAMILIES,  THE  CHAIR  OF THE COMMISSION ON QUALITY OF CARE AND ADVOCACY
FOR PERSONS WITH DISABILITIES, AND THE EXECUTIVE DIRECTOR OF  THE  DISA-

S. 4601--A                          3

BILITIES  PLANNING  COUNCIL,  ALL OF WHOM SHALL SERVE EX OFFICIO AND WHO
MAY DESIGNATE REPRESENTATIVES TO ACT ON THEIR BEHALF;
  (B)  SEVEN MEMBERS APPOINTED BY THE GOVERNOR, WHO SHALL POSSESS EXPER-
TISE IN ASDS. AT LEAST TWO  APPOINTEES  SHALL  REPRESENT  NOT-FOR-PROFIT
ENTITIES  WITH  THE  PRIMARY  PURPOSE  OF PROVIDING ACCESS TO EDUCATION,
INFORMATION AND/OR SERVICES RELATED TO THE CARE OF PATIENTS; AND
  (C) EIGHT MEMBERS APPOINTED BY THE GOVERNOR ON THE  RECOMMENDATION  OF
THE LEGISLATIVE LEADERS AS FOLLOWS:
  (1)  THE  TEMPORARY  PRESIDENT  OF  THE  SENATE AND THE SPEAKER OF THE
ASSEMBLY SHALL EACH RECOMMEND THREE MEMBERS TO THE COUNCIL.  THE  TEMPO-
RARY  PRESIDENT OF THE SENATE AND THE SPEAKER OF THE ASSEMBLY SHALL EACH
RECOMMEND AT LEAST ONE CLINICAL OR RESEARCH EXPERT IN THE FIELD OF  ASDS
AND AT LEAST ONE FAMILY MEMBER OF A PATIENT; AND
  (2)  THE  MINORITY LEADER OF THE SENATE AND THE MINORITY LEADER OF THE
ASSEMBLY SHALL EACH RECOMMEND ONE MEMBER TO THE COUNCIL.
  3. VACANCIES IN THE MEMBERSHIP OF THE COUNCIL SHALL BE FILLED  IN  THE
MANNER PROVIDED FOR ORIGINAL APPOINTMENTS.
  4.  THE  COMMISSIONER OF THE DEPARTMENT OF HEALTH AND THE COMMISSIONER
OF THE OFFICE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES SHALL SERVE, EX
OFFICIO, AS CO-CHAIRS OF THE COUNCIL. ADMINISTRATIVE DUTIES OF THE COUN-
CIL SHALL BE THE RESPONSIBILITY OF, AND EXECUTED BY, THE  DEPARTMENT  OF
HEALTH  AND THE OFFICE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES PURSU-
ANT TO AN AGREEMENT EFFECTED BY THE CO-CHAIRS.
  5. MEMBERS OF THE COUNCIL SHALL  RECEIVE  NO  COMPENSATION  FOR  THEIR
SERVICES BUT SHALL BE REIMBURSED FOR NECESSARY EXPENSES.
  6.  THE  COUNCIL SHALL MEET QUARTERLY, OR MORE FREQUENTLY IF ITS BUSI-
NESS SHALL REQUIRE, PROVIDED THAT THE COMMUNITY FORUMS REQUIRED PURSUANT
TO SECTION NINE HUNDRED EIGHT-B  OF  THIS  ARTICLE  SHALL  CONSTITUTE  A
FORMAL MEETING OF THE COUNCIL.
  S  908-B.  FUNCTIONS,  POWERS  AND DUTIES OF THE COUNCIL. 1. NOT LATER
THAN ONE YEAR AFTER THE EFFECTIVE DATE  OF  THIS  ARTICLE,  THE  COUNCIL
SHALL  CONDUCT  COMMUNITY  FORUMS  TO  GAIN  INPUT FROM PATIENTS, FAMILY
MEMBERS, SERVICE PROVIDERS,  EXPERT  RESEARCHERS  AND  OTHER  INTERESTED
PARTIES CONCERNING THE DEVELOPMENT OF THE STATE POLICY AND PLAN REQUIRED
BY  THIS  SECTION. THE COUNCIL SHALL THEN CONDUCT COMMUNITY FORUMS EVERY
FIVE YEARS, OR MORE FREQUENTLY AS THE COUNCIL SHALL DETERMINE. COMMUNITY
FORUMS SHALL BE CONDUCTED IN OR AROUND ALBANY, BINGHAMTON, BUFFALO, LONG
ISLAND, NEW YORK CITY,  NORTHERN  METROPOLITAN  NEW  YORK,  PLATTSBURGH,
POTSDAM,  POUGHKEEPSIE,  ROCHESTER,  SYRACUSE, UTICA, AND OTHER AREAS AS
THE COUNCIL SHALL DETERMINE.
  2. THE COUNCIL SHALL PROVIDE THE INITIAL REPORT OF  THE  STATE  POLICY
AND PLAN REQUIRED BY THIS SECTION TO THE GOVERNOR AND THE LEGISLATURE ON
OR  BEFORE  FEBRUARY  FIRST,  TWO THOUSAND FIFTEEN, AND SHALL PROVIDE AN
UPDATE OF SUCH POLICY AND PLAN BY FEBRUARY FIRST OF EVERY YEAR THEREAFT-
ER. THE STATE POLICY AND PLAN SHALL INCLUDE  COMPREHENSIVE  INFORMATION,
FINDINGS AND RECOMMENDATIONS CONCERNING, BUT NOT LIMITED TO, THE FOLLOW-
ING:
  (A)  COORDINATION  OF SERVICES, INCLUDING: COORDINATING STATE SERVICES
AND PROVIDING CASE MANAGEMENT; CLARIFYING AND  STREAMLINING  ELIGIBILITY
AND  INTAKE PROCESSES FOR STATE SERVICE SYSTEMS; ADDRESSING THE NEEDS OF
PATIENTS WHO FAIL TO MEET ELIGIBILITY CRITERIA OF  STATE  AGENCIES;  AND
UNITING  PUBLIC  AND  PRIVATE  AGENCIES IN A MANNER THAT WILL BEST SERVE
PATIENTS AND THEIR FAMILIES. IN ASSESSING  THE  STRENGTHS  AND  GAPS  IN
SERVICES  FOR  PATIENTS  AND  THEIR  FAMILIES, THE STATE POLICY AND PLAN
SHALL INCLUDE EVALUATIONS AND RECOMMENDATIONS BY REGION;

S. 4601--A                          4

  (B) EARLY IDENTIFICATION AND  INTERVENTION,  INCLUDING:  STANDARDIZING
ASD  SCREENING  PRACTICES; TRAINING EDUCATORS, MEDICAL PROFESSIONALS AND
OTHER SERVICE PROVIDERS TO RECOGNIZE AND TREAT ASDS; AND PROMOTING EARLY
CHILDHOOD SCREENING BY PRIMARY CARE PHYSICIANS;
  (C)   LIFELONG   SERVICE  DELIVERY,  INCLUDING:  PROMOTING  ACCESS  TO
EVIDENCE-BASED SERVICES FOR PATIENTS OF ALL AGES; ESTABLISHING TREATMENT
GUIDELINES AND TRAINING PROGRAMS FOR CAREGIVERS;  PROVIDING  RESIDENTIAL
SUPPORTS  TO  ADULT  PATIENTS;  AND IMPLEMENTING EMPLOYMENT TRAINING AND
POST-SCHOOL TRANSITIONAL SERVICES;
  (D) FAMILY SUPPORT, INCLUDING:  EXPANDING  RESPITE  CARE  OPTIONS  AND
IMPLEMENTING OTHER MEANS TO REDUCE STRAIN ON FAMILIES;
  (E)  INCREASED DISSEMINATION OF INFORMATION, INCLUDING: INCREASING ASD
AWARENESS PROGRAMS; DISTRIBUTING BEST PRACTICES  TO  EDUCATORS,  MEDICAL
PROFESSIONALS  AND  OTHER SERVICE PROVIDERS; CONTINUING THE TASK FORCE'S
EFFORTS TO CREATE A CENTRALIZED HUB OF INFORMATION ON ASDS  THROUGH  THE
LAUNCH  OF  AN ONLINE INITIATIVE FOR ADULTS AND CHILDREN ON THE SPECTRUM
(NEW YORK ACTS); AND ENHANCING SUPPORT  FOR  PATIENTS  AND  FAMILIES  IN
NON-ENGLISH SPEAKING COMMUNITIES;
  (F)  COORDINATED  RESEARCH,  INCLUDING:   UTILIZING AVAILABLE RESEARCH
FUNDS IN THE MOST EFFECTIVE AND EFFICIENT  MANNER;  TRANSLATING  RESULTS
INTO  IMPROVED  TREATMENT  PRACTICES; DISTRIBUTING RESULTS TO EDUCATORS,
MEDICAL PROFESSIONALS AND  OTHER  SERVICE  PROVIDERS;  AND  UNITING  ASD
RESEARCHERS IN SEEKING TO ACHIEVE A BETTER UNDERSTANDING OF ASDS;
  (G)  FINANCING  TRAINING, TREATMENT AND RESEARCH IN THE STATE, INCLUD-
ING: MAKING FINANCING MORE EFFICIENT AND EFFECTIVE; STRENGTHENING FAMILY
SERVICES AND SUPPORTS; PROVIDING A SEAMLESS SPECTRUM OF  SERVICES  IRRE-
SPECTIVE  OF  AGENCY  JURISDICTION;  IDENTIFYING  EXISTING AND POTENTIAL
SOURCES OF FUNDING; AND PARTNERING WITH PRIVATE INDIVIDUALS, FOUNDATIONS
AND OTHER ENTITIES; AND
  (H) A STATISTICAL ANALYSIS OF DATA CONCERNING THE PREVALENCE OF AUTISM
IN NEW YORK STATE, BOTH STATEWIDE AND BY REGION; A LISTING OF  AVAILABLE
AND  PROPOSED  PROGRAMS,  AND THEIR AVAILABILITY BY REGION; A LISTING OF
AVAILABLE AND PROPOSED EXPENDITURES, AND THEIR AVAILABILITY BY REGION; A
LISTING OF FINANCIAL RESOURCES AVAILABLE FOR THE PROVISION  OF  SERVICES
TO  PATIENTS AND THEIR FAMILIES; AND SUCH OTHER INFORMATION AS THE COUN-
CIL SHALL DEEM RELEVANT.
  3. EXCEPT WHERE OTHERWISE PROHIBITED BY STATE STATUTE  OR  BY  FEDERAL
LAW,  RULE  OR  REQUIREMENT, THE PLAN SHALL BE BINDING UPON MEMBER STATE
AGENCIES, WHICH SHALL PROMULGATE REGULATIONS AND TAKE SUCH OTHER ACTIONS
REQUIRED TO EFFECTUATE THE STATE POLICY AND PLAN.
  4. THE COUNCIL SHALL SELECT AND DESIGNATE REGIONAL NEW YORK CENTERS ON
AUTISM AND RELATED DISABILITIES, HEREINAFTER NYCARD FACILITIES, FOR  THE
PURPOSE  OF IDENTIFYING, DISSEMINATING, AND ASSISTING IN THE IMPLEMENTA-
TION OF EVIDENCE-BASED PRACTICES TO SERVE PATIENTS AND THEIR FAMILIES.
  (A) THE COUNCIL SHALL ESTABLISH CRITERIA FOR THE SELECTION AND  DESIG-
NATION OF NYCARD FACILITIES, WHICH SHALL INCLUDE AN ASSESSMENT OF APPLI-
CANT FACILITIES':
  (1) PARTICIPATION IN TRAINING TEACHERS, PARENTS AND PROFESSIONALS;
  (2) LEVEL OF NON-STATE FINANCIAL ASSISTANCE AVAILABLE TO SUPPORT OPER-
ATIONS;
  (3)  UNDERSTANDING  OF PROGRAM GOALS AND OBJECTIVES ARTICULATED BY THE
COUNCIL;
  (4) PROPOSED GEOGRAPHICAL AREA TO BE SERVED;
  (5) PROPOSED WORK PLAN AND STAFF EXPERTISE;

S. 4601--A                          5

  (6) RELATIONSHIP WITH ENTITIES OR COMMUNITIES TO BE SERVED,  EVIDENCED
BY  SUCH  FACTORS  AS  REPRESENTATION ON BOARDS OF DIRECTORS OR ADVISORY
COMMITTEES; AND
  (7) SUCH OTHER FACTORS AS THE COUNCIL SHALL DETERMINE.
  (B)  THE  COUNCIL SHALL DEVELOP A REQUEST FOR PROPOSALS, A REQUEST FOR
QUALIFICATIONS, OR A REQUEST FOR EXPRESSIONS OF  INTEREST  AS  IT  DEEMS
APPROPRIATE;  AND  IT  SHALL  ACCEPT APPLICATIONS IN RESPONSE FOR DESIG-
NATION AS A NYCARD FACILITY FROM NOT-FOR-PROFIT, ACADEMIC  AND  RESEARCH
ENTITIES  IN  THE STATE. WITHIN EIGHTEEN MONTHS AFTER THE EFFECTIVE DATE
OF THIS ARTICLE THE COUNCIL SHALL:
  (1) DESIGNATE AS NYCARD FACILITIES: FEDERAL STUDIES TO ADVANCE  AUTISM
RESEARCH  AND  TREATMENT  (STAART)  NETWORK  PROGRAMS LOCATED WITHIN THE
STATE, THE CODY CENTER FOR  AUTISM  AND  DEVELOPMENTAL  DISABILITIES  AT
STONY  BROOK UNIVERSITY, AND THE CENTER FOR AUTISM AND RELATED DISABILI-
TIES AT THE UNIVERSITY AT ALBANY;
  (2) EXPAND CURRENT NYCARD FACILITIES  LOCATED  IN  OR  AROUND  ALBANY,
BUFFALO,  NEW  YORK  CITY, NORTHERN METROPOLITAN NEW YORK AND ROCHESTER;
AND
  (3) CREATE ONE OR MORE NYCARD  FACILITIES  IN  OR  AROUND  BINGHAMTON,
PLATTSBURGH, POTSDAM, POUGHKEEPSIE, SYRACUSE, UTICA AND SUCH OTHER AREAS
AS THE COUNCIL SHALL DETERMINE.
  (C) NYCARD FACILITIES SHALL PROVIDE TRAINING, REFERRAL AND INFORMATION
FOR  PARENTS, EDUCATORS, MEDICAL PROFESSIONALS AND OTHER SERVICE PROVID-
ERS, INCLUDING;
  (1) INFORMATION AND REFERRAL;
  (2) EDUCATION AND TRAINING;
  (3) TECHNICAL ASSISTANCE AND CONSULTATION;
  (4) PROVISION OF, OR REFERRAL TO, FAMILY SUPPORT GROUPS;
  (5) DISSEMINATION OF EVIDENCE-BASED MODELS OF PRACTICE  FOR  EFFECTIVE
SERVICE DELIVERY; AND
  (6) SUCH OTHER SERVICES AS THE COUNCIL SHALL REQUIRE.
  (D)   WHERE   FEASIBLE,   NYCARD   FACILITIES   SHALL   ALSO   PROVIDE
TREATMENT-BASED SERVICES INCLUDING, BUT NOT LIMITED TO,  CASE  CONSULTA-
TION AND CLINICAL SERVICES.
  (E)  THE  COUNCIL  IS  HEREBY AUTHORIZED TO CONTRACT FOR SERVICES WITH
DESIGNATED NYCARD FACILITIES PURSUANT TO THIS SUBDIVISION AND TO PROVIDE
GRANTS PURSUANT TO SUCH CONTRACTS WITHIN AMOUNTS DESIGNATED SPECIFICALLY
THEREFORE. THE COUNCIL MAY ACT THROUGH ONE OR MORE  MEMBER  STATE  AGEN-
CIES,  WHICH  IT SHALL DESIGNATE BY MAJORITY VOTE, FOR ADMINISTRATION OF
SUCH CONTRACTS AND GRANTS. INSOFAR AS POSSIBLE, WHERE PROVISION OF  SUCH
SERVICES  IS  PAID  FOR,  IN WHOLE OR IN PART, THROUGH A CONTRACT WITH A
STATE AGENCY, THE COST CHARGED TO RECIPIENTS SHALL BE REDUCED PRO  RATA.
CONTRACTS WITH NYCARD FACILITIES SHALL VARY DEPENDING ON THE SERVICES TO
BE  PROVIDED,  AND ANY SUCH CONTRACT SHALL REQUIRE THAT FUNDING PROVIDED
BY, THROUGH OR PURSUANT TO THIS  SUBDIVISION,  NOT  BE  USED  TO  OFFSET
EXISTING EXPENDITURES FOR THE SAME OR SIMILAR PROGRAMS.
  5.  NYCARD  FACILITIES,  AS WELL AS ORGANIZATIONS RECEIVING FEDERAL OR
NON-STATE GRANT FUNDS FOR RESEARCH, MAY RECEIVE GRANTS PURSUANT TO  THIS
SUBDIVISION  FOR  RESEARCH WITHIN AMOUNTS DESIGNATED SPECIFICALLY THERE-
FORE.  THE COUNCIL IS HEREBY AUTHORIZED TO ADMINISTER  SUCH  GRANTS  AND
MAY  ACT THROUGH ONE OR MORE MEMBER STATE AGENCIES WHICH IT SHALL DESIG-
NATE BY MAJORITY VOTE.  SUCH GRANTS MAY ALLOW  FOR  THE  ENHANCEMENT  OF
ACTIVITIES  FUNDED  FROM  SUCH  NON-STATE SOURCES THAT ARE ALREADY BEING
UNDERTAKEN BY SUCH ORGANIZATIONS, INCLUDING: THE CONTINUATION OF ONGOING
RESEARCH; THE PROVISION OF TECHNICAL INFORMATION; GUIDANCE  FOR  PRACTI-
TIONERS  ON    ASD  CARE  STRATEGIES,  THERAPIES,  MEDICATIONS AND OTHER

S. 4601--A                          6

RELATED  MATTERS;  COLLABORATIONS    WITH  PRACTITIONERS,  SCHOOLS   AND
NETWORKS;  AND  OTHER  ACTIVITIES  THE  COUNCIL  DEEMS APPROPRIATE. SUCH
GRANTS MAY BE USED FOR ANY PURPOSE IN  FURTHERANCE  OF  SUCH  ACTIVITIES
INCLUDING,  WITHOUT  LIMITATION, THE PURCHASE OF EQUIPMENT AND SUPPLIES,
PAYMENT OF SALARIES, OR OTHER ACTIVITIES AND PURPOSES AS APPROVED BY THE
COUNCIL.
  S 4. This act shall take effect on the ninetieth day  after  it  shall
have become a law.

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