Assembly Actions -
Lowercase Senate Actions - UPPERCASE |
|
---|---|
Jan 28, 2010 |
referred to health |
Assembly Bill A9791
2009-2010 Legislative Session
Sponsored By
WEISENBERG
Archive: Last Bill Status - In Assembly Committee
- Introduced
-
- In Committee Assembly
- In Committee Senate
-
- On Floor Calendar Assembly
- On Floor Calendar Senate
-
- Passed Assembly
- Passed Senate
- Delivered to Governor
- Signed By Governor
Actions
co-Sponsors
Adriano Espaillat
Michael Benedetto
Nettie Mayersohn
Ellen C. Jaffee
multi-Sponsors
James Bacalles
Robert Barra
William Boyland
Daniel Burling
2009-A9791 (ACTIVE) - Details
- See Senate Version of this Bill:
- S6656
- Current Committee:
- Assembly Health
- Law Section:
- Public Health Law
- Laws Affected:
- Amd §2500-a, Pub Health L
2009-A9791 (ACTIVE) - Sponsor Memo
BILL NUMBER:A9791 TITLE OF BILL: An act to amend the public health law, in relation to requiring neonatal testing for certain diseases PURPOSE: To require the testing of newborns for Pompe disease, Fabry disease, Niemann-Pick disease, Gaucher disease and severe combined immunodeficiency disease (commonly referred to as SCID). SUMMARY OF PROVISIONS: Subdivision (a) of Section 2500-a of the Public Health Law, as amended by Chapter 863 of the Laws of 1986, is amended to add Pompe disease, Fabry disease, Niemann-Pick disease, Gaucher disease and severe combined immunodeficiency disease (SCID) to the list of tests to be administered to infants born in the State of New York. EXISTING LAW: Current New York State Law does not mandate the testing of infants for Pompe disease, Fabry disease, Niemann-Pick disease, Gaucher disease or severe combined immunodeficiency disease (SCID). JUSTIFICATION: New York State's Newborn Screening Program began in 1965. The goal of
2009-A9791 (ACTIVE) - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 9791 I N A S S E M B L Y January 28, 2010 ___________ Introduced by M. of A. WEISENBERG -- read once and referred to the Committee on Health AN ACT to amend the public health law, in relation to requiring neonatal testing for certain diseases THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. Subdivision (a) of section 2500-a of the public health law, as amended by chapter 863 of the laws of 1986, is amended to read as follows: (a) It shall be the duty of the administrative officer or other person in charge of each institution caring for infants twenty-eight days or less of age and the person required in pursuance of the provisions of section forty-one hundred thirty of this chapter to register the birth of a child, to cause to have administered to every such infant or child in its or his care a test for phenylketonuria, homozygous sickle cell disease, hypothyroidism, branched-chain ketonuria, galactosemia, homo- cystinuria, POMPE DISEASE, FABRY DISEASE, NIEMANN-PICK DISEASE, GAUCHER DISEASE, SEVERE COMBINED IMMUNODEFICIENCY DISEASE and such other diseases and conditions as may from time to time be designated by the commissioner in accordance with rules or regulations prescribed by the commissioner. Testing, the recording of the results of such tests, tracking, follow-up reviews and educational activities shall be performed at such times and in such manner as may be prescribed by the commissioner. The commissioner shall promulgate regulations setting forth the manner in which information describing the purposes of the requirements of this section shall be disseminated to parents or a guar- dian of the infant tested. S 2. This act shall take effect January 1, 2011; provided, that, effective immediately, the addition, amendment and/or repeal of any rule or regulation necessary for the implementation of this act on its effec- tive date is authorized and directed to be completed on or before such date. EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD15505-02-0
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