Senate Bill S2735

                            
                    S T A T E   O F   N E W   Y O R K
________________________________________________________________________

                                  2735

                       2009-2010 Regular Sessions

                            I N  S E N A T E

                            February 27, 2009
                               ___________

Introduced  by  Sen. LAVALLE -- read twice and ordered printed, and when
  printed to be committed to the Committee on  Energy  and  Telecommuni-
  cations

AN  ACT  to amend the executive law, in relation to establishing the New
  York state genome institute

  THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND  ASSEM-
BLY, DO ENACT AS FOLLOWS:

  Section  1. The executive law is amended by adding a new section 209-u
to read as follows:
  S 209-U. NEW YORK STATE GENOME INSTITUTE. 1. THERE  IS  HEREBY  ESTAB-
LISHED  WITHIN  THE  OFFICE,  THE  NEW YORK STATE GENOME INSTITUTE. SUCH
INSTITUTE SHALL:
  A. REVIEW RESEARCH ACTIVITY CONDUCTED AT INSTITUTIONS WITHIN THE STATE
REGARDING GENETICS AND THE APPLICATION OF GENETICS FOR MEDICAL TREATMENT
OF HUMANS;
  B. MAKE RECOMMENDATIONS TO THE OFFICE REGARDING THE PROGRESS OF GENET-
IC RESEARCH AT INSTITUTIONS WITHIN THE STATE AND THE TRANSFER AND APPLI-
CATION OPPORTUNITIES OF SUCH GENETIC RESEARCH FOR COMMERCIALIZATION  AND
APPLICATION FOR MEDICAL USES; AND
  C.  ENSURE  THAT  WHENEVER  EFFORTS  ARE  MADE TO APPLY FOR AND SECURE
FEDERAL GRANTS, THAT SUCH EFFORTS ARE COORDINATED IN SUCH  A  MANNER  TO
ENSURE  THAT  THE  STATE  IS COMPETITIVE WITH OTHER STATES, AND THAT THE
FULL RANGE OF RESEARCH ACTIVITY CONDUCTED IN THE STATE  IS  INCLUDED  IN
ANY SUCH FEDERAL GRANT APPLICATION PROCESS.
  2. THE MEMBERSHIP OF THE NEW YORK STATE GENOME INSTITUTE SHALL INCLUDE
ONE  REPRESENTATIVE  AND  ONE RESEARCHER FROM EACH INSTITUTION OF HIGHER
EDUCATION IN THE STATE THAT OFFERS A DOCTORAL DEGREE IN BIOCHEMISTRY  OR
BIOMEDICAL  ENGINEERING,  ONE REPRESENTATIVE AND ONE RESEARCHER FROM THE
CENTER FOR ADVANCED TECHNOLOGY IN BIOTECHNOLOGY AT THE STATE  UNIVERSITY
OF  NEW  YORK  AT STONY BROOK AND CORNELL UNIVERSITY, ONE REPRESENTATIVE
AND ONE RESEARCHER FROM ANY MEDICAL CENTER  THAT  HAS  RECEIVED  FEDERAL

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                      [ ] is old law to be omitted.
                                                           LBD00620-01-9
              

S. 2735                             2

FUNDING IN EXCESS OF THREE MILLION DOLLARS FOR BIOMEDICAL RESEARCH AS IT
RELATES  TO  THE  STUDY  OF  GENOMICS  AND  ONE  REPRESENTATIVE  AND ONE
RESEARCHER FROM ANY FEDERAL FACILITY LOCATED IN THIS STATE THAT CONDUCTS
GENOMICS RELATED RESEARCH.
  3.  THE  NEW  YORK  STATE  GENOME INSTITUTE SHALL BE CO-CHAIRED BY THE
EXECUTIVE DIRECTOR OF THE OFFICE AND THE CHAIRMAN OF THE STATE UNIVERSI-
TY RESEARCH FOUNDATION. THE CO-CHAIRS SHALL WORK TOGETHER TO MONITOR THE
ACTIVITY AND FUNDING OF ANY AND ALL  INSTITUTIONS  INVOLVED  IN  GENOMIC
RESEARCH.
  4. THE CO-CHAIRS, JOINTLY OR INDIVIDUALLY, SHALL, AT THEIR DISCRETION,
ADD  NEW  MEMBERS  TO  THE NEW YORK STATE GENOME INSTITUTE PROVIDED THAT
SUCH NEW MEMBERS SHOW THEIR DIRECT INVOLVEMENT IN GENETIC RESEARCH. SUCH
NEW MEMBERS  MAY  REPRESENT  ANY  NOT-FOR-PROFIT  OR  FOR-PROFIT  ENTITY
PROVIDED  THAT  SUCH ENTITIES RECORDED ACTIVITY THAT IS CONDUCTED WITHIN
NEW YORK STATE AND THAT SUCH ENTITY CAN SHOW THAT IT SPENDS OR  RECEIVES
IN  GRANTS  OF THREE MILLION DOLLARS OR MORE A YEAR IN NEW YORK STATE IN
GENETICS-RELATED RESEARCH OR DEVELOPMENT OR THAT APPLIES  GENETIC  TECH-
NOLOGY TO IMPROVE HUMAN HEALTH OR FIGHT HUMAN DISEASE.
  5.  THE  NEW  YORK STATE GENOME INSTITUTE SHALL MEET FOUR TIMES A YEAR
AND MAKE A GENERAL REPORT TO THE CO-CHAIRS REGARDING:
  A. THE PROGRESS BEING MADE ON GENOMIC RESEARCH;
  B. THE POTENTIAL APPLICATION FOR THE RESEARCH;
  C. THE CURRENT STATUS OF RESEARCH THAT HAS BEEN ADVANCED BEYOND  BASIC
RESEARCH;
  D. ANY CURRENT AGREEMENTS OR PARTNERSHIPS THAT AN INSTITUTION MAY HAVE
ESTABLISHED  WITH  OTHER PUBLIC OR PRIVATE ORGANIZATIONS BOTH WITHIN AND
WITHOUT THE STATE;
  E. ANY LICENSING OR ROYALTY AGREEMENTS THAT HAVE  BEEN  SIGNED  BY  AN
INSTITUTION WITH A FIRM OR COMPANY;
  F.  ANY APPLICATION FOR GRANTS AT THE FEDERAL OR STATE LEVEL THAT HAVE
BEEN SUBMITTED; AND
  G. ANY NEW PRIVATE FIRMS THAT HAVE BEEN FORMED THAT ARE THE DIRECT  OR
INDIRECT RESULT OF GENETIC RESEARCH CONDUCTED AT INSTITUTIONS WITHIN THE
STATE.
  6.  EACH  YEAR, ON DECEMBER FIRST, THE CO-CHAIRS SHALL SUBMIT A REPORT
TO THE GOVERNOR, THE TEMPORARY PRESIDENT OF THE SENATE AND  THE  SPEAKER
OF THE ASSEMBLY SETTING FORTH ALL OF THE INFORMATION DESCRIBED IN SUBDI-
VISION  TWO  OF  THIS  SECTION.  IN  ADDITION,  SUCH ANNUAL REPORT SHALL
PROVIDE AN OVERALL ANALYSIS AND ASSESSMENT OF THE GENETIC RESEARCH BEING
DONE IN NEW YORK STATE  AND  MAKE  RECOMMENDATIONS  FOR  FUTURE  FUNDING
AND/OR  STATUTORY  CHANGES THAT WOULD ENHANCE AND IMPROVE THE ABILITY OF
EACH INDIVIDUAL INSTITUTION OR GROUP OF INSTITUTIONS WORKING ON  GENETIC
RESEARCH  IN NEW YORK STATE TO TRANSFER THAT RESEARCH AND TECHNOLOGY FOR
COMMERCIAL MEDICAL APPLICATIONS AND TO SUCCESSFULLY  APPLY  FOR  FEDERAL
FUNDING  IN  SUPPORT OF BOTH THE BASIC RESEARCH AND THE TRANSFER OF SUCH
RESEARCH IN COMMUNITY MEDICAL APPLICATION.
  S 2. This act shall take effect immediately.