|Assembly Actions - Lowercase
Senate Actions - UPPERCASE
|Jan 08, 2014||referred to health|
|Jan 09, 2013||referred to health|
senate Bill S190
Archive: Last Bill Status - In Committee
- In Committee
- On Floor Calendar
- Passed Senate
- Passed Assembly
- Delivered to Governor
- Signed/Vetoed by Governor
S190 - Details
S190 - Summary
Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; and provides that participation in such program shall be voluntary and all information shall be confidential.
S190 - Sponsor Memo
BILL NUMBER:S190 TITLE OF BILL: An act to amend the public health law, in relation to the establishment of a program for familial dysautonomia, Canavan's disease and Tay-Sachs disease screening and counseling PURPOSE OR GENERAL IDEA OF THE BILL: To provide for the establishment and operation of a state funded voluntary familial dysautonomia, Canavan's disease, and Tay-Sachs disease screening and counseling program, and to develop and disseminate educational materials relating to these diseases. This bill would permit the commissioner of health to make grants and enter into contracts with public and nonprofit, private entities for projects for the establishment and operation of this program. Participation would be wholly voluntary, The program would be established and operated primarily through existing health programs. All tests, medical records and other information regarding screening and counseling would be kept strictly confidential. Within one year of enactment of this legislation, the commissioner will submit a report to the governor and the legislature on the administration of this article and on recommendations for additional legislation.
S190 - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 190 2013-2014 Regular Sessions I N S E N A T E (PREFILED) January 9, 2013 ___________ Introduced by Sen. SQUADRON -- read twice and ordered printed, and when printed to be committed to the Committee on Health AN ACT to amend the public health law, in relation to the establishment of a program for familial dysautonomia, Canavan's disease and Tay- Sachs disease screening and counseling THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. The public health law is amended by adding a new article 27-DDD to read as follows: ARTICLE 27-DDD PROGRAM FOR FAMILIAL DYSAUTONOMIA, CANAVAN'S DISEASE AND TAY-SACHS DISEASE SCREENING AND COUNSELING SECTION 2770. LEGISLATIVE FINDINGS AND DECLARATION OF PURPOSE. 2771. PROGRAM FOR FAMILIAL DYSAUTONOMIA, CANAVAN'S DISEASE AND TAY-SACHS DISEASE SCREENING AND COUNSELING. 2772. COMMISSIONER; FUNCTIONS, POWERS AND DUTIES. 2773. COSTS. 2774. VOLUNTARY PARTICIPATION. 2774-A. APPLICATION; ADMINISTRATION AS TO GRANTS AND CONTRACTS. 2774-B. CONFIDENTIALITY OF INFORMATION. 2774-C. REPORTS. S 2770. LEGISLATIVE FINDINGS AND DECLARATION OF PURPOSE. 1. THE LEGISLATURE HEREBY FINDS AND DECLARES: (A) THAT FAMILIAL DYSAUTONOMIA, CANAVAN'S DISEASE AND TAY-SACHS DISEASE ARE DEBILITATING, INHERITABLE DISEASES THAT HAVE AFFECTED MANY CITIZENS OF THE STATE; (B) THAT FAMILIAL DYSAUTONOMIA, CANAVAN'S DISEASE AND TAY-SACHS DISEASE ARE DEADLY AND TRAGIC BURDENS WHICH ARE LIKELY TO STRIKE ONE-FOURTH OF THE CHILDREN BORN TO PARENTS BOTH OF WHOM ARE FAMILIAL DYSAUTONOMIA, CANAVAN'S DISEASE AND TAY-SACHS DISEASE CARRIERS; EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted.
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