senate Bill S190

2013-2014 Legislative Session

Establishes program for familial dysautonomia and Tay-Sachs disease screening; authorizes department of health to provide grants

download bill text pdf

Sponsored By

Archive: Last Bill Status -


  • Introduced
  • In Committee
  • On Floor Calendar
    • Passed Senate
    • Passed Assembly
  • Delivered to Governor
  • Signed/Vetoed by Governor

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Actions

view actions (2)
Assembly Actions - Lowercase
Senate Actions - UPPERCASE
Jan 08, 2014 referred to health
Jan 09, 2013 referred to health

S190 - Details

See Assembly Version of this Bill:
A314
Law Section:
Public Health Law
Laws Affected:
Add Art 27-DDD ยงยง2770 - 2774-c, Pub Health L
Versions Introduced in Previous Legislative Sessions:
2011-2012: S738, A412
2009-2010: S7976, A1135

S190 - Summary

Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; and provides that participation in such program shall be voluntary and all information shall be confidential.

S190 - Sponsor Memo

S190 - Bill Text download pdf

                    S T A T E   O F   N E W   Y O R K
________________________________________________________________________

                                   190

                       2013-2014 Regular Sessions

                            I N  S E N A T E

                               (PREFILED)

                             January 9, 2013
                               ___________

Introduced  by Sen. SQUADRON -- read twice and ordered printed, and when
  printed to be committed to the Committee on Health

AN ACT to amend the public health law, in relation to the  establishment
  of  a  program  for  familial dysautonomia, Canavan's disease and Tay-
  Sachs disease screening and counseling

  THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND  ASSEM-
BLY, DO ENACT AS FOLLOWS:

  Section  1.   The public health law is amended by adding a new article
27-DDD to read as follows:
                              ARTICLE  27-DDD
          PROGRAM FOR FAMILIAL DYSAUTONOMIA, CANAVAN'S DISEASE
             AND TAY-SACHS DISEASE SCREENING AND COUNSELING
SECTION 2770. LEGISLATIVE FINDINGS AND DECLARATION OF PURPOSE.
        2771. PROGRAM FOR FAMILIAL DYSAUTONOMIA, CANAVAN'S  DISEASE  AND
               TAY-SACHS DISEASE SCREENING AND COUNSELING.
        2772. COMMISSIONER; FUNCTIONS, POWERS AND DUTIES.
        2773. COSTS.
        2774. VOLUNTARY PARTICIPATION.
        2774-A. APPLICATION; ADMINISTRATION AS TO GRANTS AND CONTRACTS.
        2774-B. CONFIDENTIALITY OF INFORMATION.
        2774-C. REPORTS.
  S  2770.    LEGISLATIVE  FINDINGS AND DECLARATION OF PURPOSE.   1. THE
LEGISLATURE HEREBY FINDS AND DECLARES:
  (A)  THAT  FAMILIAL  DYSAUTONOMIA,  CANAVAN'S  DISEASE  AND  TAY-SACHS
DISEASE  ARE  DEBILITATING, INHERITABLE DISEASES THAT HAVE AFFECTED MANY
CITIZENS OF THE STATE;
  (B)  THAT  FAMILIAL  DYSAUTONOMIA,  CANAVAN'S  DISEASE  AND  TAY-SACHS
DISEASE  ARE  DEADLY  AND  TRAGIC  BURDENS  WHICH  ARE  LIKELY TO STRIKE
ONE-FOURTH OF THE CHILDREN BORN TO PARENTS BOTH  OF  WHOM  ARE  FAMILIAL
DYSAUTONOMIA, CANAVAN'S DISEASE AND TAY-SACHS DISEASE CARRIERS;

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                      [ ] is old law to be omitted.

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