|Assembly Actions - Lowercase
Senate Actions - UPPERCASE
|Jan 08, 2014||referred to finance|
|May 14, 2013||referred to finance|
senate Bill S5177
Archive: Last Bill Status -
- In Committee
- On Floor Calendar
- Passed Senate
- Passed Assembly
- Delivered to Governor
- Signed/Vetoed by Governor
S5177 - Details
S5177 - Summary
Creates an education and outreach program for the autoimmune disease known as lupus; provides for an advisory council consisting of representatives of people with lupus and their families and health care providers who specialize in treating lupus; appropriates funds for the lupus education and awareness program.
S5177 - Sponsor Memo
BILL NUMBER:S5177 TITLE OF BILL: An act to amend the public health law, in relation to the lupus education and outreach program; and making an appropriation therefor PURPOSE OR GENERAL IDEA OF BILL: The purpose of this Act is to create a multi-pronged, statewide program to promote public and health professional (state and local health and human services officials, physicians, nurses and other health care providers) awareness and increase knowledge concerning the causes and consequences of Lupus, the importance of early diagnosis and appropriate management, and effective treatment and management strategies by: 1. Conducting educational and training programs for health professionals on Lupus diagnosis and management; 2. Developing and disseminating educational materials and information to patients and health professionals on Lupus research results and Lupus health care services available; 3. Designing and implementing a statewide public education campaign aimed at heightening public awareness of Lupus; and
S5177 - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 5177 2013-2014 Regular Sessions I N S E N A T E May 14, 2013 ___________ Introduced by Sen. SAVINO -- read twice and ordered printed, and when printed to be committed to the Committee on Finance AN ACT to amend the public health law, in relation to the lupus educa- tion and outreach program; and making an appropriation therefor THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. Legislative intent. The legislature hereby finds the following: (a) Lupus is a serious, complex, debilitating autoimmune disease that can cause inflammation and tissue damage to virtually any organ system in the body, including the skin, joints, other connective tissue, blood and blood vessels, heart, lungs, kidney, and brain. (b) Lupus research estimates that approximately one and a half to two million Americans live with some form of lupus; lupus affects women nine times more often than men and eighty percent of newly diagnosed cases of lupus develop among women of childbearing age. (c) Lupus disproportionately affects women of color -- it is two to three times more common among African-Americans, Hispanics, Asians and Native Americans and is generally more prevalent in minority populations -- a health disparity that remains unexplained. According to the Centers for Disease Control and Prevention the rate of lupus mortality has increased since the late 1970s and is higher among older African-Ameri- can women. (d) No new drugs have been approved by the U.S. Food and Drug Adminis- tration specifically for lupus in nearly forty years and while current treatments for the disease can be effective, they can lead to damaging side effects. (e) The pain and fatigue associated with lupus can threaten people's ability to live independently, make it difficult to maintain employment and lead normal lives, and one in five people with lupus is disabled by the disease, and consequently receives support from government programs, EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD02047-01-3
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