senate Bill S6239A

2013-2014 Legislative Session

Establishes the sickle cell treatment act of 2014; appropriation

download bill text pdf

Sponsored By

Archive: Last Bill Status - In Committee


  • Introduced
  • In Committee
  • On Floor Calendar
    • Passed Senate
    • Passed Assembly
  • Delivered to Governor
  • Signed/Vetoed by Governor

do you support this bill?

Actions

view actions (3)
Assembly Actions - Lowercase
Senate Actions - UPPERCASE
Aug 11, 2014 print number 6239a
amend and recommit to finance
Jan 08, 2014 referred to finance

Bill Amendments

Original
A (Active)
Original
A (Active)

S6239 - Details

Current Committee:
Law Section:
Appropriations
Laws Affected:
Amd §365, Soc Serv L; add Art 31 Title IV §3126, Pub Health L

S6239 - Summary

Establishes the sickle cell treatment act of 2014; makes an appropriation of one million dollars.

S6239 - Sponsor Memo

S6239 - Bill Text download pdf

                    S T A T E   O F   N E W   Y O R K
________________________________________________________________________

                                  6239

                            I N  S E N A T E

                               (PREFILED)

                             January 8, 2014
                               ___________

Introduced  by  Sen. SANDERS -- read twice and ordered printed, and when
  printed to be committed to the Committee on Finance

AN ACT to amend the social services law and the public  health  law,  in
  relation  to  establishing  the sickle cell treatment act of 2014; and
  making an appropriation therefor

  THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND  ASSEM-
BLY, DO ENACT AS FOLLOWS:

  Section  1.  This  act  shall be known and may be cited as the "sickle
cell treatment act of 2014".
  S 2. Legislative findings. The legislature hereby finds  and  declares
the following:
  (1)  Sickle  cell  disease  (SCD) is an inherited disease of red blood
cells that is a major health problem in the United States.
  (2) Approximately 100,000 Americans have SCD and  approximately  1,000
American  babies  are  born  with  the  disease each year. SCD also is a
global problem with close to  500,000  babies  born  annually  with  the
disease.
  (3)  In the United States, SCD is most common in African-Americans and
in those of Hispanic, Mediterranean, and Middle Eastern ancestry.  Among
newborn  American infants, SCD occurs in approximately 1 in 500 African-
Americans, 1 in 36,000 Hispanics, and 1 in 80,000 Caucasians.
  (4) More than 3,000,000 Americans, mostly African-Americans, have  the
sickle  cell  trait.  These Americans are healthy carriers of the sickle
cell gene who have inherited the normal hemoglobin gene from one  parent
and  the  sickle cell gene from the other parent. A sickle cell trait is
not a disease, but when both parents have the sickle cell  trait,  there
is  a 1 in 4 chance with each pregnancy that the child will be born with
SCD.
  (5) Children with SCD may exhibit frequent pain  episodes,  entrapment
of  blood  within  the  spleen,  severe anemia, acute lung complications
(acute chest syndrome), and priapism. During episodes  of  severe  pain,
spleen  enlargement,  or  acute  lung  complications,  life  threatening
complications can develop rapidly.  Children with SCD are also  at  risk

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets

Co-Sponsors

S6239A (ACTIVE) - Details

Current Committee:
Law Section:
Appropriations
Laws Affected:
Amd §365, Soc Serv L; add Art 31 Title IV §3126, Pub Health L

S6239A (ACTIVE) - Summary

Establishes the sickle cell treatment act of 2014; makes an appropriation of one million dollars.

S6239A (ACTIVE) - Sponsor Memo

S6239A (ACTIVE) - Bill Text download pdf

                    S T A T E   O F   N E W   Y O R K
________________________________________________________________________

                                 6239--A

                            I N  S E N A T E

                               (PREFILED)

                             January 8, 2014
                               ___________

Introduced  by  Sen. SANDERS -- read twice and ordered printed, and when
  printed to be committed to  the  Committee  on  Finance  --  committee
  discharged, bill amended, ordered reprinted as amended and recommitted
  to said committee

AN  ACT  to  amend the social services law and the public health law, in
  relation to establishing the sickle cell treatment act  of  2014;  and
  making an appropriation therefor

  THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:

  Section 1. This act shall be known and may be  cited  as  the  "sickle
cell treatment act of 2014".
  S  2.  Legislative findings. The legislature hereby finds and declares
the following:
  (1) Sickle cell disease (SCD) is an inherited  disease  of  red  blood
cells that is a major health problem in the United States.
  (2)  Approximately  100,000 Americans have SCD and approximately 1,000
American babies are born with the disease  each  year.  SCD  also  is  a
global  problem  with  close  to  500,000  babies born annually with the
disease.
  (3) In the United States, SCD is most common in African-Americans  and
in  those of Hispanic, Mediterranean, and Middle Eastern ancestry. Among
newborn American infants, SCD occurs in approximately 1 in 500  African-
Americans, 1 in 36,000 Hispanics, and 1 in 80,000 Caucasians.
  (4)  More than 3,000,000 Americans, mostly African-Americans, have the
sickle cell trait. These Americans are healthy carriers  of  the  sickle
cell  gene who have inherited the normal hemoglobin gene from one parent
and the sickle cell gene from the other parent. A sickle cell  trait  is
not  a  disease, but when both parents have the sickle cell trait, there
is a 1 in 4 chance with each pregnancy that the child will be born  with
SCD.
  (5)  Children  with SCD may exhibit frequent pain episodes, entrapment
of blood within the spleen,  severe  anemia,  acute  lung  complications
(acute  chest  syndrome),  and priapism. During episodes of severe pain,

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets

Comments

Open Legislation comments facilitate discussion of New York State legislation. All comments are subject to moderation. Comments deemed off-topic, commercial, campaign-related, self-promotional; or that contain profanity or hate speech; or that link to sites outside of the nysenate.gov domain are not permitted, and will not be published. Comment moderation is generally performed Monday through Friday.

By contributing or voting you agree to the Terms of Participation and verify you are over 13.