NY State Senate Bill 2017-S6366

Archive: Last Bill Status - In Senate Committee Health Committee

Introduced
- In Committee Assembly
- In Committee Senate
- On Floor Calendar Assembly
- On Floor Calendar Senate
- Passed Assembly
- Passed Senate
Delivered to Governor
Signed By Governor

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Actions

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	Assembly Actions - Lowercase Senate Actions - UPPERCASE
Jan 03, 2018	referred to health
May 11, 2017	referred to health

2017-S6366 (ACTIVE) - Details

See Assembly Version of this Bill:: A8284
Current Committee:: Senate Health
Law Section:: Public Health Law
Laws Affected:: Add §2532, Pub Health L
Versions Introduced in Other Legislative Sessions:: 2019-2020: S663, A3942
2021-2022: S6147, A2627
2023-2024: A2221

2017-S6366 (ACTIVE) - Summary

Relates to prenatal trisomy diagnosis awareness; requires certain information to be provided to pregnant women following trisomy testing.

2017-S6366 (ACTIVE) - Sponsor Memo

                                 BILL NUMBER:  S6366

 TITLE OF BILL :

An act to amend the public health law, in relation to prenatal trisomy
diagnosis awareness

 PURPOSE OR GENERAL IDEA OF BILL :

Requires health care practitioners who order testing to screen for
trisomy conditions such as Down Syndrome to provide up-to-date and
evidence based information about the diagnosed condition.

 SUMMARY OF SPECIFIC PROVISIONS :

Section 1. Adds a new section 2532 to the public health law.

Section 2532

1. Definitions.

2. Requirements for information to be provided by health care
practitioners to patients with a diagnosed trisomy condition. The
information must have been reviewed by medical experts and national
trisomy organizations, and must be provided in a written or an
alternative format and must include, among other things, expected

physical, developmental, educational, and psychosocial outcomes, life
expectancy, expected intellectual and functional development,
treatment options available for the particular syndrome for which the
test was positive, and contact information for nonprofit organizations
that provide information and support services for trisomy conditions.

3. Requirements for the commissioner to provide information to health
care practitioners.

Section 2. Effective date.

 JUSTIFICATION :

Surveys have shown that 99% of practitioners offer prenatal testing
for trisomy conditions such as Down Syndrome, but only 29% provide
educational materials to their patients. Prenatal testing is not only
about providing information about a positive or negative result of a
test, but also encompasses information about the tested-for condition.

The purpose of this legislation is to ensure that expectant and new
parents receive accurate, up-to-date information on the nature of the
testing that is conducted and on the conditions that are detected.
Legislation is needed because medical professionals too often do not
educate their patients about trisomy conditions or refer them to
support organizations after a diagnosis.

Expectant mothers accepting prenatal testing are seeking information
and value having information that they can refer to at home, outside
of the physician's office, after receiving a diagnosis.

 PRIOR LEGISLATIVE HISTORY :

None.

 FISCAL IMPLICATIONS :

To be determined.

 EFFECTIVE DATE :
This act shall take effect on the ninetieth day after it shall have
become a law.

2017-S6366 (ACTIVE) - Bill Text download pdf

                            
 
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   6366
 
                        2017-2018 Regular Sessions
 
                             I N  S E N A T E
 
                               May 11, 2017
                                ___________
 
 Introduced  by  Sen.  BOYLE  -- read twice and ordered printed, and when
   printed to be committed to the Committee on Health
 
 AN ACT to amend the public health law, in relation to  prenatal  trisomy
   diagnosis awareness
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:

   Section 1. The public health law is amended by adding  a  new  section
 2532 to read as follows:
   §  2532. PRENATAL TRISOMY DIAGNOSIS AWARENESS. 1. FOR PURPOSES OF THIS
 SECTION, THE FOLLOWING TERMS SHALL HAVE THE FOLLOWING MEANINGS:
   (A) "HEALTH CARE  PRACTITIONER"  MEANS  A  MEDICAL  PROFESSIONAL  THAT
 PROVIDES PRENATAL OR POSTNATAL CARE AND ADMINISTERS OR REQUESTS ADMINIS-
 TRATION  OF  A  DIAGNOSTIC  OR  SCREENING  TEST TO A PREGNANT WOMAN THAT
 DETECTS FOR TRISOMY CONDITIONS; AND
   (B) "TRISOMY CONDITIONS" MEANS TRISOMY 13, OTHERWISE  KNOWN  AS  PATAU
 SYNDROME;  TRISOMY  18, OTHERWISE KNOWN AS EDWARDS SYNDROME; AND TRISOMY
 21, OTHERWISE KNOWN AS DOWN SYNDROME.
   2. A HEALTH CARE PRACTITIONER WHO ORDERS PRENATAL TESTS FOR A PREGNANT
 WOMAN TO SCREEN FOR  TRISOMY  CONDITIONS  SHALL  PROVIDE  THE  FOLLOWING
 INFORMATION  TO THE PREGNANT WOMAN IF THE TEST REVEALS A POSITIVE RESULT
 FOR ANY OF THE TRISOMY CONDITIONS:
   (A) UP-TO-DATE AND EVIDENCE-BASED INFORMATION ABOUT THE TRISOMY CONDI-
 TIONS THAT HAS BEEN REVIEWED BY MEDICAL  EXPERTS  AND  NATIONAL  TRISOMY
 ORGANIZATIONS.  THE  INFORMATION  MUST  BE  PROVIDED  IN A WRITTEN OR AN
 ALTERNATIVE FORMAT AND MUST INCLUDE THE FOLLOWING:
   I. EXPECTED PHYSICAL,  DEVELOPMENTAL,  EDUCATIONAL,  AND  PSYCHOSOCIAL
 OUTCOMES;
   II. LIFE EXPECTANCY;
   III. THE CLINICAL COURSE DESCRIPTION;
   IV. EXPECTED INTELLECTUAL AND FUNCTIONAL DEVELOPMENT; AND

  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD11756-01-7

 S. 6366                             2
 
   V.  TREATMENT  OPTIONS AVAILABLE FOR THE PARTICULAR SYNDROME FOR WHICH
 THE TEST WAS POSITIVE.
   (B)  CONTACT  INFORMATION  FOR  NONPROFIT  ORGANIZATIONS  THAT PROVIDE
 INFORMATION AND SUPPORT SERVICES FOR TRISOMY CONDITIONS.
   3. (A) THE COMMISSIONER SHALL PROVIDE WRITTEN  INFORMATION  TO  HEALTH
 CARE  PRACTITIONERS  NECESSARY  TO  IMPLEMENT  SUBDIVISION  TWO  OF THIS
 SECTION.
   (B) ADDITIONALLY, THE COMMISSIONER SHALL POST SUCH INFORMATION ON  THE
 DEPARTMENT'S WEBSITE.
   (C)  THE  COMMISSIONER  SHALL  FOLLOW  EXISTING DEPARTMENT PRACTICE TO
 ENSURE THAT THE INFORMATION IS CULTURALLY AND LINGUISTICALLY APPROPRIATE
 FOR ALL RECIPIENTS.
   (D) ANY LOCAL OR NATIONAL  ORGANIZATION  THAT  PROVIDES  EDUCATION  OR
 SERVICES RELATED TO TRISOMY CONDITIONS, MAY REQUEST THAT THE COMMISSION-
 ER  INCLUDE THE ORGANIZATION'S INFORMATIONAL MATERIAL AND CONTACT INFOR-
 MATION ON THE DEPARTMENT'S WEBSITE. ONCE A REQUEST IS MADE, THE  COMMIS-
 SIONER MAY ADD THE INFORMATION TO THE WEBSITE.
   §  2.  This  act shall take effect on the ninetieth day after it shall
 have become a law. Effective immediately, the addition, amendment and/or
 repeal of any rule or regulation necessary  for  the  implementation  of
 this  act  on its effective date are authorized to be made and completed
 on or before such effective date.

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Senate Bill S6366

Sponsored By

Archive: Last Bill Status - In Senate Committee Health Committee

2017-S6366 (ACTIVE) - Details

2017-S6366 (ACTIVE) - Summary

2017-S6366 (ACTIVE) - Sponsor Memo

2017-S6366 (ACTIVE) - Bill Text download pdf

Comments

Senate Bill S6366

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Sponsored By

Phil Boyle

Archive: Last Bill Status - In Senate Committee Health Committee

2017-S6366 (ACTIVE) - Details

2017-S6366 (ACTIVE) - Summary

2017-S6366 (ACTIVE) - Sponsor Memo

2017-S6366 (ACTIVE) - Bill Text download pdf

Comments