S T A T E O F N E W Y O R K
2019-2020 Regular Sessions
I N A S S E M B L Y
January 14, 2019
Introduced by M. of A. GOTTFRIED, ORTIZ, SIMON, MORINELLO, CAHILL,
GIGLIO, JAFFEE, COLTON, THIELE, ENGLEBRIGHT, MOSLEY, COOK, GUNTHER,
McDONOUGH, CRESPO, RAIA, DINOWITZ, PEOPLES-STOKES, BLAKE, PERRY,
STECK, GOODELL, L. ROSENTHAL, QUART, RODRIGUEZ, KIM, PALMESANO,
ABINANTI, RA, DiPIETRO, HYNDMAN, D'URSO, JEAN-PIERRE, BENEDETTO,
GALEF, WEPRIN, M. L. MILLER, WILLIAMS, LAVINE, BARRON, JOHNS, WOERNER,
DICKENS, BRONSON, NIOU, CUSICK, NORRIS, CARROLL, SOLAGES, SEAWRIGHT,
ARROYO, ZEBROWSKI, DE LA ROSA, TAYLOR -- Multi-Sponsored by -- M. of
A. AUBRY, BARCLAY, BRAUNSTEIN, CYMBROWITZ, FITZPATRICK, HEVESI,
LENTOL, PICHARDO, PRETLOW, RAMOS, SCHIMMINGER -- read once and
referred to the Committee on Health
AN ACT to amend the public health law, the tax law and the social
services law, in relation to support of living organ donation
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. Short title. This act shall be known and may be cited as
the "New York state living donor support act".
§ 2. The article heading of article 43-B of the public health law, as
added by chapter 589 of the laws of 1990, is amended to read as follows:
ORGAN[, TISSUE AND BODY PARTS] PROCUREMENT AND [STORAGE]
§ 3. Sections 4360 through 4368 of article 43-B of the public health
law are designated title 1, and a new title heading is added to read as
ORGAN, TISSUE AND BODY PARTS PROCUREMENT AND STORAGE
§ 4. Article 43-B of the public health law is amended by adding a new
title 2 to read as follows:
LIVING ORGAN DONATION
SECTION 4369. DEFINITIONS.
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
A. 1129 2
4370. REIMBURSEMENT OF LIVING DONOR EXPENSES.
4371. TRANSPLANT EDUCATION OF PATIENTS WITH KIDNEY DISEASE OR
END STAGE RENAL FAILURE.
§ 4369. DEFINITIONS. AS USED IN THIS TITLE, THE FOLLOWING TERMS SHALL
HAVE THE FOLLOWING MEANINGS, UNLESS THE CONTEXT CLEARLY REQUIRES OTHER-
1. "LIVING DONATION" MEANS THE GIFT BY AN INDIVIDUAL OF AN ORGAN OF
THAT INDIVIDUAL'S BODY TO BE TRANSPLANTED INTO ANOTHER INDIVIDUAL'S
BODY, THE GIFT TO BE EXECUTED WHILE THE DONATING INDIVIDUAL IS LIVING
AND WITH THE INTENT THAT THE DONATING INDIVIDUAL WILL CONTINUE TO LIVE
AFTER THE EXECUTION OF THE GIFT.
2. "LIVING DONOR" MEANS AN INDIVIDUAL WHO MAKES A LIVING DONATION.
3. "LIVING DONOR EXPENSES" MEANS FINANCIAL COSTS INCURRED BY A LIVING
DONOR THAT ARISE DUE TO THE ACT OF LIVING DONATION AND ITS CONSEQUENCES,
THAT ARE SUBJECT TO REIMBURSEMENT UNDER SECTION FORTY-THREE HUNDRED
SEVENTY OF THIS TITLE.
4. "LIVING DONOR SUPPORT PROGRAM" OR "PROGRAM" MEANS THE LIVING DONOR
SUPPORT PROGRAM ESTABLISHED UNDER SECTION FORTY-THREE HUNDRED SEVENTY OF
5. "PAIRED DONATION" MEANS A LIVING DONATION IN WHICH THE LIVING
DONOR'S ORGAN IS INCOMPATIBLE WITH THE ULTIMATE INTENDED RECIPIENT AND
THE LIVING DONOR'S ORGAN IS TRANSPLANTED INTO ANOTHER RECIPIENT, AND IN
TURN ANOTHER LIVING DONOR MAKES A LIVING DONATION, DIRECTLY OR THROUGH
ONE OR MORE PAIRED DONATIONS, TO THE ULTIMATE RECIPIENT.
§ 4370. REIMBURSEMENT OF LIVING DONOR EXPENSES. 1. THE LIVING DONOR
SUPPORT PROGRAM IS HEREBY ESTABLISHED IN THE DEPARTMENT.
2. (A) SUBJECT TO APPROPRIATIONS THEREFOR, THE PROGRAM SHALL PAY THE
LIVING DONOR EXPENSES FOR LIVING DONORS WHO ARE RESIDENTS OF THE STATE
AND MAKE A LIVING DONATION IN WHICH THE ULTIMATE RECIPIENT, EITHER
DIRECTLY OR THROUGH PAIRED DONATION IS A RESIDENT OF THE STATE. THE
COMMISSIONER THROUGH REGULATIONS SHALL ESTABLISH ELIGIBLE LIVING DONOR
EXPENSES THAT ARE ELIGIBLE FOR REIMBURSEMENT UNDER THE PROGRAM WHICH
SHALL INCLUDE AT A MINIMUM: LOST WAGES (INCLUDING DEMONSTRATED LOST
NON-EMPLOYMENT INCOME); THE ECONOMIC VALUE OF SICK OR VACATION DAYS
EXPENDED; TRAVEL AND LODGING, CHILD CARE AND ELDER CARE EXPENSES; AND
COSTS OF MEDICATIONS AND CARE ASSOCIATED WITH THE LIVING DONATION
SURGERY. THE TOTAL PERIOD OF TIME RELATED TO LOST WAGES OR EXPENDED SICK
OR VACATION DAYS SHALL NOT EXCEED FOUR WEEKS UNLESS SPECIAL CIRCUM-
STANCES ARE DEMONSTRATED, SUCH AS THE NATURE OF PHYSICAL LABOR REQUIRED
FOR THE LIVING DONOR'S EMPLOYMENT; PROVIDED THAT THE TOTAL PERIOD SHALL
IN NO EVENT EXCEED EIGHT WEEKS. THE COMMISSIONER MAY BY REGULATION
IMPOSE A LIMITATION ON: (I) THE AMOUNT OF LOST WAGES FOR A LIVING DONOR
MAKING AN INCOME IN EXCESS OF AN ANNUAL RATE OF ONE HUNDRED TWENTY-FIVE
THOUSAND DOLLARS; OR (II) THE AMOUNT OF LIVING DONOR EXPENSES ABOVE
FOURTEEN THOUSAND DOLLARS FOR ANY SINGLE LIVING DONOR; AND MAY INCLUDE
ADDITIONAL LIVING DONOR EXPENSES INCLUDING REIMBURSEMENT FOR COSTS OF
CARE PERFORMED BY RELATIVES OR FAMILY MEMBERS OF THE LIVING DONOR.
(B) THE PROGRAM SHALL NOT PAY REIMBURSEMENT FOR EXPENSES PAID OR
REQUIRED TO BE PAID FOR BY ANY THIRD-PARTY PAYER, INCLUDING WAGES OR
OTHER EXPENSES THAT WERE COVERED UNDER PAID MEDICAL LEAVE BY THE LIVING
DONOR'S EMPLOYER OR THAT ARE COVERED BY OTHER SOURCES OF REIMBURSEMENT
SUCH AS THE FEDERAL NATIONAL LIVING DONOR ASSISTANCE PROGRAM. THE
PROGRAM SHALL BE THE PAYER OF LAST RESORT WITH RESPECT TO ANY BENEFIT
UNDER THE PROGRAM.
A. 1129 3
(C) LIVING DONOR EXPENSES SHALL BE REIMBURSED AS CLOSE IN TIME AS
POSSIBLE TO THEIR BEING INCURRED BY THE DONOR, INCLUDING BY PRE-PAYMENT
3. (A) THE COMMISSIONER MAY CONTRACT FOR THE ADMINISTRATION OF
REIMBURSEMENT UNDER THE PROGRAM. FACTORS SUCH AS COST TO THE STATE, EASE
OF USE FOR THE LIVING DONOR, AND EASE OF USE FOR TRANSPLANT CENTER
HOSPITALS SHALL BE TAKEN INTO CONSIDERATION WHEN AWARDING SUCH CONTRACT.
(B) THE COMMISSIONER SHALL MAKE REGULATIONS TO IMPLEMENT THIS SECTION.
(C) THIS SECTION SHALL BE INTERPRETED SO AS NOT TO CONFLICT WITH THE
FEDERAL NATIONAL ORGAN TRANSPLANT ACT (42 U.S.C. 274E).
§ 4371. TRANSPLANT EDUCATION OF PATIENTS WITH KIDNEY DISEASE OR END
STAGE RENAL FAILURE. FOR ANY PATIENT WITH CHRONIC KIDNEY DISEASE STAGE
FOUR OR END STAGE RENAL DISEASE, A NEPHROLOGIST MANAGING THE PATIENT'S
TREATMENT OR, IF THE PATIENT IS NOT UNDER THE TREATMENT OF A NEPHROLO-
GIST THEN THE PATIENT'S PRIMARY CARE PRACTITIONER, SHALL CONSIDER WHETH-
ER THE PATIENT IS A CANDIDATE FOR TRANSPLANTATION UNDER APPLICABLE
PROFESSIONAL AND LEGAL GUIDELINES, AND, IF THE PATIENT APPEARS TO BE A
CANDIDATE FOR TRANSPLANTATION, PROVIDE THE PATIENT WITH TRANSPLANT
EDUCATION MATERIALS INCLUDING THOSE PREPARED UNDER SECTION TWO HUNDRED
SEVEN OF THIS CHAPTER.
§ 5. Paragraph (d) of subdivision 1 of section 207 of the public
health law, as amended by section 16 of part A of chapter 109 of the
laws of 2010, is amended to read as follows:
(d) The need FOR and importance of organ and tissue donation, INCLUD-
ING LIVING DONATION, including information about being registered as an
organ and tissue donor and executing documents of gift under article
forty-three of this chapter; AND INFORMATION TO INCREASE PATIENT UNDER-
STANDING ABOUT THE MEDICAL OPTION OF TRANSPLANT AND ITS DESIRABILITY.
IN IMPLEMENTING THIS PARAGRAPH, THE DEPARTMENT SHALL CONSULT WITH THE
TRANSPLANT COUNCIL IN THE DEPARTMENT.
§ 6. Paragraph 38 of subsection (c) of section 612 of the tax law, as
added by chapter 565 of the laws of 2006, is amended to read as follows:
(38) An amount of up to ten thousand dollars if a taxpayer, while
living, donates one or more of his or her human organs to another human
being for human organ transplantation. For purposes of this paragraph,
"human organ" means all or part of a liver, pancreas, kidney, intestine,
lung, or bone marrow. A subtract modification allowed under this para-
graph shall be claimed in the taxable year in which the human organ
transplantation occurs. PROVIDED, HOWEVER, THAT THIS DEDUCTION SHALL
NOT APPLY TO ANY DONATION FOR WHICH THE TAXPAYER HAS RECEIVED BENEFITS
UNDER SECTION FORTY-THREE HUNDRED SEVENTY OF THE PUBLIC HEALTH LAW.
§ 7. The social services law is amended by adding a new section 365-o
to read as follows:
§ 365-O. PROVISION AND COVERAGE OF SERVICES FOR LIVING ORGAN DONORS.
THIS SECTION APPLIES IN THE CASE OF A LIVING DONOR UNDER SECTION FORTY-
THREE HUNDRED SEVENTY OF THE PUBLIC HEALTH LAW WHO IS OTHERWISE ELIGIBLE
FOR MEDICAL ASSISTANCE UNDER THIS ARTICLE. SERVICES FOR THAT PERSON
COVERED UNDER THAT SECTION THAT WOULD OTHERWISE BE HEALTH CARE SERVICES
UNDER THIS ARTICLE SHALL BE PAID FOR UNDER THIS ARTICLE AND NOT UNDER
SUCH SECTION, PROVIDED FEDERAL FINANCIAL PARTICIPATION IS AVAILABLE.
§ 8. This act shall take effect on the first of April next succeeding
the date on which it shall have become a law; provided that, effective
immediately, the commissioner of health shall make regulations and take
other actions reasonably necessary to implement this act on that date.