S T A T E O F N E W Y O R K
________________________________________________________________________
1430
2019-2020 Regular Sessions
I N A S S E M B L Y
January 15, 2019
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Introduced by M. of A. SIMON, ENGLEBRIGHT, JAFFEE, GOTTFRIED, MONTESANO,
RA, GALEF, MOSLEY, CAHILL, TITUS, LAVINE, OTIS, BLAKE, BARRETT, DiPIE-
TRO, PALMESANO, ORTIZ, COLTON, D'URSO -- Multi-Sponsored by -- M. of
A. ABBATE, CARROLL, CRESPO, DINOWITZ, GARBARINO, HYNDMAN, LUPARDO,
McDONOUGH, RICHARDSON, WALKER -- read once and referred to the Commit-
tee on Aging
AN ACT to amend the elder law, in relation to establishing an
Alzheimer's disease outreach and education program
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. The elder law is amended by adding a new section 225 to
read as follows:
§ 225. ALZHEIMER'S DISEASE OUTREACH AND EDUCATION PROGRAM. 1. THE
OFFICE, IN CONSULTATION WITH THE COMMISSIONER OF HEALTH, IS HEREBY
AUTHORIZED AND DIRECTED TO ESTABLISH AN ALZHEIMER'S DISEASE OUTREACH AND
EDUCATION PROGRAM ("THE PROGRAM") FOR MEDICAL AND NON-MEDICAL PROFES-
SIONALS, INCLUDING PHYSICIANS, NURSES, AND SOCIAL SERVICES PERSONNEL WHO
WORK WITH OLDER NEW YORKERS AND THEIR FAMILIES, AND FOR CONSUMERS, CARE-
GIVERS AND OTHER INDIVIDUALS AND ORGANIZATIONS WORKING WITH OR ON BEHALF
OF PERSONS WITH ALZHEIMER'S DISEASE AND RELATED DEMENTIA. THE PURPOSE OF
THE PROGRAM SHALL BE TO:
(A) PROMOTE EARLIER IDENTIFICATION OF DEMENTIA IN HEALTH CARE FACILI-
TIES INCLUDING BUT NOT LIMITED TO HOSPITALS, NURSING HOMES, CLINICS, AND
ASSISTED LIVING FACILITIES;
(B) PROVIDE INFORMATION AND ASSISTANCE ON WHERE TO FIND COMMUNITY
SUPPORT SERVICES, INCLUDING CAREGIVER SUPPORT GROUPS AND SERVICES,
RESPITE, CARE MANAGEMENT AND TO SERVE AS A CLEARINGHOUSE FOR RELATED
INFORMATION; AND
(C) PROMOTE PUBLIC AWARENESS OF AND ACCESS TO RESOURCES AND INFORMA-
TION CONCERNING ALZHEIMER'S DISEASE AND ANY OTHER DEMENTIA RELATED
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD01507-01-9
A. 1430 2
MATTERS THAT THE COMMISSIONER AND DIRECTOR OF THE OFFICE FOR THE AGING
DEEM APPROPRIATE.
2. THE PROGRAM SHALL INCLUDE BUT SHALL NOT BE LIMITED TO ANY OF THE
FOLLOWING ELEMENTS:
(A) EDUCATIONAL AND INFORMATIONAL MATERIALS IN PRINT, AUDIO, VISUAL,
ELECTRONIC OR OTHER MEDIA;
(B) TRAINING CURRICULUM INCLUDING BEST PRACTICES FOR INSTITUTIONS OF
HIGHER LEARNING AND FOR ONGOING IN-SERVICE TRAINING;
(C) PUBLIC SERVICE ANNOUNCEMENTS AND ADVERTISEMENTS; AND
(D) ESTABLISHMENT OF TOLL-FREE TELEPHONE HOTLINES AND ELECTRONIC
SERVICES TO PROVIDE INFORMATION.
3. THE OFFICE SHALL PRODUCE, MAKE AVAILABLE TO OTHERS FOR REPROD-
UCTION, OR CONTRACT WITH OTHERS TO DEVELOP MATERIALS MENTIONED IN THIS
SECTION AS THE DIRECTOR DEEMS APPROPRIATE. THESE MATERIALS SHALL BE MADE
AVAILABLE TO THE PUBLIC FREE OF CHARGE AS APPROPRIATE OR FOR A FEE UNDER
CERTAIN CIRCUMSTANCES. THE DIRECTOR MAY REQUEST THE COMMISSIONER OF
HEALTH TO REQUIRE ANY HEALTH CARE PROVIDER TO MAKE THESE MATERIALS
AVAILABLE TO PATIENTS WHERE APPROPRIATE AND ENCOURAGE NON-MEDICAL
PROFESSIONALS TO MAKE THEM AVAILABLE TO THE CLIENTS THEY SERVE.
4. IN EXERCISING ANY OF HIS OR HER POWERS UNDER THIS SECTION, THE
DIRECTOR SHALL CONSULT WITH APPROPRIATE HEALTH CARE PROFESSIONALS AND
PROVIDERS, SENIOR SERVICE PROVIDERS, ORGANIZATIONS REPRESENTING PERSONS
WITH DEMENTIA OR COGNITIVE IMPAIRMENTS, CONSUMERS AND PATIENTS OR ORGAN-
IZATIONS REPRESENTING THEM.
5. THE DIRECTOR SHALL ENSURE THAT ALL INFORMATION AND MATERIALS
PRODUCED UNDER THIS SECTION ARE MAINTAINED AND UPDATED TO REFLECT BEST
PRACTICE RECOMMENDATIONS AND ARE CULTURALLY AND LINGUISTICALLY APPROPRI-
ATE FOR THE COMMUNITIES SERVED BY THE ALZHEIMER'S DISEASE OUTREACH AND
EDUCATION PROGRAM. THE OFFICE SHALL POST ELECTRONIC COPIES OF OUTREACH
MATERIAL, INCLUDING BEST PRACTICES, ON ITS WEBSITE. THE DEPARTMENT OF
HEALTH SHALL POST THE SAME INFORMATION ON ITS WEBSITE.
6. THE DIRECTOR MAY APPOINT ADVISORY COUNCILS RELATING TO VARIOUS
MATTERS UNDER THIS SECTION. ALL SUCH COUNCILS SHALL INCLUDE REPRESEN-
TATION OF HEALTH CARE PROFESSIONALS, PROVIDERS, SENIOR SERVICE PROVID-
ERS, ORGANIZATIONS REPRESENTING PERSONS WITH DEMENTIA OR COGNITIVE
IMPAIRMENTS, CONSUMERS, PATIENTS AND OTHER APPROPRIATE INTERESTS. THE
MEMBERS OF THE COUNCILS SHALL RECEIVE NO COMPENSATION FOR THEIR
SERVICES, BUT SHALL BE ALLOWED THEIR ACTUAL AND NECESSARY EXPENSES
INCURRED IN PERFORMANCE OF THEIR DUTIES.
7. IN ADDITION TO STATE FUNDS APPROPRIATED UNDER THIS SECTION, THE
DIRECTOR MAY ACCEPT GRANTS FROM PUBLIC OR PRIVATE SOURCES. THE DIRECTOR,
IN ADMINISTERING THIS SECTION, SHALL SEEK TO COORDINATE PROGRAMS AND
ACTIVITIES UNDER THIS SECTION WITH OTHER PUBLIC AND PRIVATE PROGRAMS,
AND MAY UNDERTAKE JOINT OR COOPERATIVE PROGRAMS WITH OTHER PUBLIC OR
PRIVATE ENTITIES.
8. THE DIRECTOR MAY MAKE RULES AND REGULATIONS NECESSARY AND APPROPRI-
ATE FOR IMPLEMENTATION OF THIS SECTION.
§ 2. This act shall take effect immediately.