Assembly Actions -
Lowercase Senate Actions - UPPERCASE |
|
---|---|
Dec 20, 2019 |
approval memo.66 signed chap.719 |
Dec 17, 2019 |
delivered to governor |
Jun 04, 2019 |
returned to assembly passed senate 3rd reading cal.864 substituted for s4497 |
Jun 04, 2019 |
substituted by a5762 |
May 29, 2019 |
advanced to third reading |
May 22, 2019 |
2nd report cal. |
May 21, 2019 |
1st report cal.864 |
May 14, 2019 |
reported and committed to finance |
Mar 13, 2019 |
referred to health |
Senate Bill S4497
Signed By Governor2019-2020 Legislative Session
Sponsored By
(D, WF) 33rd Senate District
Archive: Last Bill Status Via A5762 - Signed by Governor
- Introduced
-
- In Committee Assembly
- In Committee Senate
-
- On Floor Calendar Assembly
- On Floor Calendar Senate
-
- Passed Assembly
- Passed Senate
- Delivered to Governor
- Signed By Governor
Actions
Votes
co-Sponsors
(R, C) 60th Senate District
(D, WF) 37th Senate District
(D, WF) 21st Senate District
(D) 11th Senate District
2019-S4497 (ACTIVE) - Details
- See Assembly Version of this Bill:
- A5762
- Law Section:
- Public Health Law
- Laws Affected:
- Add Art 27-L §2799-u, Pub Health L
2019-S4497 (ACTIVE) - Sponsor Memo
BILL NUMBER: S4497 SPONSOR: RIVERA TITLE OF BILL: An act to amend the public health law, in relation to establishing the rare disease advisory council PURPOSE OR GENERAL IDEA OF BILL: To amend the public health law, in relation to establishing the rare disease advisory council SUMMARY OF SPECIFIC PROVISIONS: This act amends the public health law by adding a new article 27-L to read as follows: Section 1 adds a new section 2799-u to the public health law to estab- lish a rare disease advisory council within the department with the duty to advise and consult on policy matters related to rare disease. It establishes the number and type of members on the council, the appoint- ment process, the meeting schedule, and advisory council duties.
2019-S4497 (ACTIVE) - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 4497 2019-2020 Regular Sessions I N S E N A T E March 13, 2019 ___________ Introduced by Sen. RIVERA -- read twice and ordered printed, and when printed to be committed to the Committee on Health AN ACT to amend the public health law, in relation to establishing the rare disease advisory council THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. The public health law is amended by adding a new article 27-L to read as follows: ARTICLE 27-L RARE DISEASE ADVISORY COUNCIL SECTION 2799-U. RARE DISEASE ADVISORY COUNCIL. § 2799-U. RARE DISEASE ADVISORY COUNCIL. 1. THERE SHALL BE ESTABLISHED WITHIN THE DEPARTMENT A RARE DISEASE ADVISORY COUNCIL TO ADVISE AND CONSULT ON POLICY MATTERS RELATING TO RARE DISEASE. FOR THE PURPOSES OF THIS SECTION, RARE DISEASE SHALL MEAN ANY DISEASE OR CONDITION THAT AFFECTS LESS THAN 200,000 PEOPLE IN THE UNITED STATES. 2. THE COUNCIL SHALL BE COMPOSED OF TWENTY-ONE MEMBERS CONSISTING OF: SEVENTEEN MEMBERS SHALL BE APPOINTED BY THE GOVERNOR, TWO MEMBERS SHALL BE APPOINTED BY THE SPEAKER OF THE ASSEMBLY, AND TWO MEMBERS SHALL BE APPOINTED BY THE TEMPORARY PRESIDENT OF THE SENATE. THE GOVERNOR SHALL DESIGNATE THE COMMISSIONER, OR HIS OR HER DESIGNEE, AS CHAIR OF THE COUNCIL, AND THE SUPERINTENDENT OF THE DEPARTMENT OF FINANCIAL SERVICES, OR HIS OR HER DESIGNEE, AS CO-CHAIR OF THE COUNCIL. THE COUNCIL SHALL AT ALL TIMES INCLUDE IN ITS MEMBERSHIP THE FOLLOWING, WHICH SHALL BE APPOINTED BY THE GOVERNOR: TWO PHYSICIANS LICENSED AND PRACTICING IN THE STATE WITH EXPERIENCE RESEARCHING, DIAGNOSING, OR TREATING RARE DISEASES; ONE REGISTERED NURSE OR ADVANCED PRACTICE REGISTERED NURSE LICENSED AND PRACTICING IN THE STATE WITH EXPERIENCE TREATING RARE DISEASES; TWO HOSPITAL ADMINISTRATORS FROM HOSPITALS IN THE STATE THAT PROVIDE CARE TO PERSONS DIAGNOSED WITH A RARE DISEASE, ONE OF WHOM MUST REPRESENT A HOSPITAL IN WHICH THE SCOPE OF SERVICE FOCUSES ON RARE EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted.
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