S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   8923
 
                             I N  S E N A T E
 
                              March 28, 2024
                                ___________
 
 Introduced  by  Sen.  PARKER -- read twice and ordered printed, and when
   printed to be committed to the Committee on Health
 
 AN ACT to amend the public health law, in  relation  to  establishing  a
   sickle cell education and mapping program
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:

   Section 1. The public health law is amended by adding  a  new  section
 2500-m to read as follows:
   §  2500-M.  SICKLE  CELL DISEASE EDUCATION AND MAPPING PROGRAM. 1. FOR
 THE PURPOSES OF THIS SECTION,  "APPROVED  ORGANIZATION"  SHALL  MEAN  AN
 ORGANIZATION  APPROVED  BY  THE  COMMISSIONER, TO PROVIDE SERVICES UNDER
 THIS SUBDIVISION. SUCH ORGANIZATIONS SHALL INCLUDE, BUT NOT  BE  LIMITED
 TO, THE FOLLOWING:
   (A) A HOSPITAL LICENSED UNDER ARTICLE TWENTY-EIGHT OF THIS CHAPTER;
   (B)  A  HEALTH  MAINTENANCE ORGANIZATION LICENSED UNDER ARTICLE FORTY-
 THREE OF THE INSURANCE LAW OR CERTIFIED UNDER ARTICLE FORTY-FOUR OF THIS
 CHAPTER;
   (C) AN ORGANIZATION WITH PROGRAM  EXPERTISE  IN  SICKLE  CELL  DISEASE
 RELATED ISSUES;
   (D) A COUNTY OR CITY HEALTH DEPARTMENT; OR
   (E) ANY COMBINATION OF THE ABOVE.
   2.  THE  COMMISSIONER  IS  HEREBY  AUTHORIZED  TO CREATE A SICKLE CELL
 DISEASE EDUCATION AND MAPPING PROGRAM. THIS PROGRAM  IS  ESTABLISHED  TO
 PROMOTE  THE SCREENING AND DETECTION OF SICKLE CELL DISEASE, EDUCATE THE
 PUBLIC REGARDING SICKLE CELL DISEASE, PROVIDE  COUNSELING  AND  REFERRAL
 SERVICES AND MAP LOCATIONS OF OCCURRENCE OF SICKLE CELL DISEASE.
    3. THE COMMISSIONER SHALL PROMULGATE RULES AND REGULATIONS CONCERNING
 THE  EDUCATION  AND  MAPPING PROGRAM, SUCH EDUCATION AND MAPPING PROGRAM
 SHALL:
   (A) ESTABLISH A STATEWIDE PUBLIC EDUCATION AND  OUTREACH  CAMPAIGN  TO
 PUBLICIZE  SICKLE  CELL  DISEASE  DETECTION AND EDUCATION SERVICES, SUCH
 CAMPAIGN SHALL INCLUDE: GENERAL COMMUNITY EDUCATION, SICKLE CELL DISEASE
 SCREENING SERVICES, INFORMATION ON THE EXTENT OF COVERAGE AVAILABLE  FOR
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD14435-01-4
              

 S. 8923                             2
 
 SUCH  SERVICES  BY  HEALTH  INSURANCE,  ANY AVAILABLE MEDICAL ASSISTANCE
 PROGRAMS AND OTHER PUBLIC AND PRIVATE PROGRAMS;
   (B)  COMPILE  DATA CONCERNING SICKLE CELL DISEASE DETECTION, INCLUDING
 AN EDUCATION AND MAPPING THAT LISTS SUCH FREQUENCY OF THE OCCURRENCE  OF
 SICKLE  CELL DISEASE IN VARIOUS LOCATIONS IN THE STATE AND DISSEMINATION
 OF SUCH DATA TO THE PUBLIC ON THE DEPARTMENT'S WEBSITE;
   (C) CONSULT WITH APPROVED ORGANIZATIONS REGARDING  LOCAL  SICKLE  CELL
 DISEASE  SCREENING SERVICES, COUNSELING AND REFERRAL SERVICES WITHIN THE
 APPROVED  ORGANIZATION'S  REGION,  TO  BETTER  PROVIDE  NOTICE  OF  SUCH
 SERVICES FOR THE PUBLIC; AND
   (D) PROVIDE DATA FOR THE DEVELOPMENT OF HEALTH CARE EDUCATION PROGRAMS
 TO DIAGNOSE AND TREAT SICKLE CELL DISEASE BY PROVIDING SUCH FREQUENCY OF
 THE OCCURRENCE OF SICKLE CELL DISEASE IN VARIOUS LOCATIONS IN THE STATE.
   § 2. This act shall take effect immediately.