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Assembly Bill A10521A

2025-2026 Legislative Session

Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state

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Current Bill Status - In Assembly Committee

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Bill Amendments

2025-A10521 - Details

Current Committee:
Assembly Health
Law Section:
Public Health Law
Laws Affected:
Amd §2500-a, Pub Health L

2025-A10521 - Summary

Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state; requires tests be made available within twelve months.

2025-A10521 - Bill Text download pdf 

                             
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   10521
 
                           I N  A S S E M B L Y
 
                               March 6, 2026
                                ___________
 
 Introduced by M. of A. HEVESI -- read once and referred to the Committee
   on Health
 
 AN  ACT to amend the public health law, in relation to newborn screening
   for CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases
 
   THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND  ASSEM-
 BLY, DO ENACT AS FOLLOWS:

   Section 1. Subdivision 1 of section 2500-a of the public health law is
 amended  by  adding  a five new paragraphs (l), (m), (n), (o) and (p) to
 read as follows:
   (L) LATE-INFANTILE NEURONAL CEROID LIPOFUSCINOSIS TYPE 2 (CLN2).
   (M) MUCOPOLYSACCHARIDOSIS TYPE IVA (MPS IVA).
   (N) MUCOPOLYSACCHARIDOSIS TYPE VI (MPS VI).
   (O) MUCOPOLYSACCHARIDOSIS TYPE VII (MPS VII).
   (P) FABRY.
   § 2. This act shall take effect immediately.
 
 
 
 
 
 
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD15047-01-6

2025-A10521A (ACTIVE) - Details

Current Committee:
Assembly Health
Law Section:
Public Health Law
Laws Affected:
Amd §2500-a, Pub Health L

2025-A10521A (ACTIVE) - Summary

Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state; requires tests be made available within twelve months.

2025-A10521A (ACTIVE) - Bill Text download pdf 

                             
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                 10521--A
 
                           I N  A S S E M B L Y
 
                               March 6, 2026
                                ___________
 
 Introduced by M. of A. HEVESI -- read once and referred to the Committee
   on  Health -- committee discharged, bill amended, ordered reprinted as
   amended and recommitted to said committee
 
 AN ACT to amend the public health law, in relation to newborn  screening
   for CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. Subdivision 1 of section 2500-a of the public health law is
 amended by adding five new paragraphs (l), (m), (n), (o) and (p) to read
 as follows:
   (L) LATE-INFANTILE NEURONAL CEROID LIPOFUSCINOSIS TYPE 2 (CLN2).
   (M) MUCOPOLYSACCHARIDOSIS TYPE IVA (MPS IVA).
   (N) MUCOPOLYSACCHARIDOSIS TYPE VI (MPS VI).
   (O) MUCOPOLYSACCHARIDOSIS TYPE VII (MPS VII).
   (P) FABRY.
   § 2. Section 2500-a of the public health law is amended  by  adding  a
 new subdivision 4 to read as follows:
   4.  THE  COMMISSIONER  SHALL  ENSURE  TESTS ARE MADE AVAILABLE FOR ALL
 DISEASES AND CONDITIONS DESIGNATED PURSUANT TO PARAGRAPHS (L), (M), (N),
 (O) AND (P) OF SUBDIVISION ONE OF THIS SECTION WITHIN TWELVE  MONTHS  OF
 THE EFFECTIVE DATE OF SUCH PARAGRAPHS.
   § 3. This act shall take effect immediately.
 
 
 
 
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD15047-02-6

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