Legislation
SECTION 2021
Duty to report
Public Health (PBH) CHAPTER 45, ARTICLE 20-C*2
* § 2021. Duty to report. 1. Every physician, nurse practitioner,
physician assistant and general hospital that diagnoses or is treating a
patient diagnosed with ALS or MND shall give notice no later than one
hundred eighty days of each case of ALS or MND coming under their care,
to the department, in a format to be determined by the commissioner,
except as otherwise provided in this article.
2. All patients diagnosed with ALS or MND shall be provided with
written and verbal notice regarding the collection of information and
patient data on ALS and MND. Patients who do not wish to participate in
the collection of data shall affirmatively opt out in writing after
ample opportunity to review such notice, provided that the mere
incidence of a patient with ALS or MND shall be the sole required
information for the registry under section two thousand twenty-two of
this article for any patient who chooses not to participate.
* NB Effective January 14, 2026
physician assistant and general hospital that diagnoses or is treating a
patient diagnosed with ALS or MND shall give notice no later than one
hundred eighty days of each case of ALS or MND coming under their care,
to the department, in a format to be determined by the commissioner,
except as otherwise provided in this article.
2. All patients diagnosed with ALS or MND shall be provided with
written and verbal notice regarding the collection of information and
patient data on ALS and MND. Patients who do not wish to participate in
the collection of data shall affirmatively opt out in writing after
ample opportunity to review such notice, provided that the mere
incidence of a patient with ALS or MND shall be the sole required
information for the registry under section two thousand twenty-two of
this article for any patient who chooses not to participate.
* NB Effective January 14, 2026