Albany, N.Y. – Senator Patricia Fahy (D—Albany) was joined by the Epilepsy Foundation of New York State and Assemblymember Chantel Jackson in Albany to urge the State Legislature to pass S7445 Fahy/A08726 Jackson, legislation that would require schools across New York State to implement individualized Seizure Action Plans developed by a student’s healthcare provider. These bills would ensure that all schools have proper training and awareness in the event of a seizure, helping to safeguard students living with epilepsy and other seizure disorders.

“Across New York State, more than 200,000 of our neighbors are living with epilepsy,” said Senator Patricia Fahy (D—Albany). “This legislation will ensure that every school in New York has a clear, individualized seizure action plan and the training necessary to respond safely when a student has a seizure. No parent should worry about whether there’s someone prepared to help their child at school, and this legislation takes an important step toward making every classroom a safer place for students living with epilepsy.”

In New York State, more than 215,000 people live with active epilepsy, and 1 in 10 individuals are expected to experience a seizure in their lifetime. This legislation would require school districts, charter schools, and non-public schools to establish and follow a Seizure Action Plan for any student diagnosed with a seizure disorder whose parent or guardian submits such a plan. The legislation also calls for appropriate training of school personnel to recognize seizure symptoms and respond safely and effectively, including the administration of prescribed rescue medications where authorized.

In the event of a seizure, every minute matters and often a seizure may conclude before a nurse can reach the student. Ensuring that additional faculty and staff are trained to recognize and respond to seizures can help prevent injury, reduce complications, and in some cases, save a life. Expanding awareness and preparedness throughout school buildings provides an added layer of safety and reassurance for students and their families. An individualized seizure safety plan often includes specific seizure types and durations, possible triggers, medication details, emergency response plans and more.

“The Epilepsy Coalition of NYS is incredibly grateful to Senator Fahy for sponsoring and championing this important legislation,” said Jeannine Garab, Chairperson of the Board of Directors of the Epilepsy Coalition of NYS. “For thousands of students and faculty across New York, this bill means peace of mind, knowing that trained support will be close at hand. When families feel confident their child will receive proper assistance, it eases anxiety and allows students to focus on learning and thriving. Passing S7445 is a critical step toward safer, more inclusive schools statewide.”

The Epilepsy Coalition of New York is made up of six member agencies: Epilepsy Foundation of Northeastern New York, Inc., Epilepsy Foundation Long Island, Epilepsy Association of Western New York, Epilepsy Alliance of West Central NY, a part of EPI (Empowering People’s Independence), Epilepsy Society of Southern NY/Capabilities Partnership, Inc., and Epilepsy Foundation of Metropolitan New York. Together, the coalition provides advocacy on a statewide level and collaborates to educate and reduce stigma. The member agencies also provide an array of services that include epilepsy education and first aid training.

For more information about the Epilepsy Coalition of New York State and the work the Coalition is doing to advocate for those impacted by seizures, visit: https://nysepilepsycoalition.org/

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