Senate Bill S2386

2013-2014 Legislative Session

Enacts Aidan's law to require adrenoleukodystrophy screening of newborns

download bill text pdf

Sponsored By

Archive: Last Bill Status - In Senate Committee Finance Committee

  • Introduced
    • In Committee Assembly
    • In Committee Senate
    • On Floor Calendar Assembly
    • On Floor Calendar Senate
    • Passed Assembly
    • Passed Senate
  • Delivered to Governor
  • Signed By Governor

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2013-S2386 (ACTIVE) - Details

See Assembly Version of this Bill:
Current Committee:
Senate Finance
Law Section:
Public Health Law
Laws Affected:
Amd §2500-a, Pub Health L
Versions Introduced in 2011-2012 Legislative Session:
S7838, A10813

2013-S2386 (ACTIVE) - Summary

Enacts Aidan's law to require adrenoleukodystrophy screening of newborns.

2013-S2386 (ACTIVE) - Sponsor Memo

2013-S2386 (ACTIVE) - Bill Text download pdf

                    S T A T E   O F   N E W   Y O R K


                       2013-2014 Regular Sessions

                            I N  S E N A T E

                            January 17, 2013

Introduced  by  Sen.  ADAMS  -- read twice and ordered printed, and when
  printed to be committed to the Committee on Health

AN ACT to amend the public health law, in relation to requiring  adreno-
  leukodystrophy screening of newborns


  Section 1. This act shall be known and may be cited as "Aidan's Law".
  S 2. Subdivision (a) of section 2500-a of the public  health  law,  as
amended  by  chapter  863  of  the  laws  of 1986, is amended to read as
  (a) It shall be the duty of the administrative officer or other person
in charge of each institution caring for infants  twenty-eight  days  or
less  of  age  and the person required in pursuance of the provisions of
section forty-one hundred thirty of this chapter to register  the  birth
of  a child, to cause to have administered to every such infant or child
in its or his care a test for phenylketonuria,  homozygous  sickle  cell
disease,  hypothyroidism,  branched-chain ketonuria, galactosemia, homo-
cystinuria, ADRENOLEUKODYSTROPHY and such other diseases and  conditions
as may from time to time be designated by the commissioner in accordance
with  rules  or regulations prescribed by the commissioner. Testing, the
recording of the results of such tests, tracking, follow-up reviews  and
educational  activities  shall  be  performed  at such times and in such
manner as may be prescribed by the commissioner. The commissioner  shall
promulgate  regulations  setting  forth  the manner in which information
describing the purposes of the requirements of  this  section  shall  be
disseminated to parents or a guardian of the infant tested.
  S 3. This act shall take effect on the one hundred eightieth day after
it shall have become a law; provided, however, that effective immediate-
ly,  the  addition,  amendment  and/or  repeal of any rule or regulation
necessary for the implementation of this act on its effective  date  are
authorized  and  directed  to  be  made  and completed on or before such
effective date.

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                      [ ] is old law to be omitted.


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