S T A T E O F N E W Y O R K
________________________________________________________________________
5802--A
2013-2014 Regular Sessions
I N S E N A T E
June 15, 2013
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Introduced by Sens. GRIFFO, CARLUCCI -- read twice and ordered printed,
and when printed to be committed to the Committee on Rules -- recom-
mitted to the Committee on Mental Health and Developmental Disabili-
ties in accordance with Senate Rule 6, sec. 8 -- committee discharged,
bill amended, ordered reprinted as amended and recommitted to said
committee
AN ACT to amend the mental hygiene law, in relation to establishing the
diagnostic and statistical manual of mental disorders (DSM-5) imple-
mentation council; and providing for the repeal of such provisions
upon expiration thereof
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. Legislative intent. The legislature finds that early,
continuous and appropriate treatment facilitates the best possible
outcome for children diagnosed with autism spectrum disorder (ASD). The
legislature further finds that while periodic reformation of diagnostic
criteria is vital to ensure quality care, the legislature and state must
be able to respond accordingly if such changes may impact individuals
currently receiving treatment. Therefore, the legislature finds it
appropriate to establish a council consisting of stakeholders, including
parents and physicians, to advise the state and legislature on the
implementation and impact of the transition from the fourth edition of
the Diagnostic and Statistical Manual of Mental Disorders to the crite-
ria implemented by the fifth edition to ensure that individuals who
qualify under DSM-IV will continue to qualify under DSM-5. The legisla-
ture further finds that until such time that the state understands the
impacts it is important to ensure the continued benefits and state
services for individuals with a diagnosis.
S 2. The mental hygiene law is amended by adding a new section 16.38
to read as follows:
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD11530-05-4
S. 5802--A 2
S 16.38 DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS (DSM-5)
IMPLEMENTATION COUNCIL.
1.(A) THE OFFICE SHALL ESTABLISH A DIAGNOSTIC AND STATISTICAL MANUAL
OF MENTAL DISORDERS (DSM-5) IMPLEMENTATION COUNCIL.
(B) THE COUNCIL SHALL CONSIST OF NINETEEN MEMBERS, APPOINTED BY THE
GOVERNOR. SIX SHALL BE PARENTS OR GUARDIANS, THREE OF WHOM WHO SHALL
HAVE CHILDREN DIAGNOSED WITH A PERVASIVE DEVELOPMENTAL DISORDER (PDD)
UNDER THE FOURTH EDITION OF THE DIAGNOSTIC AND STATISTICAL MANUAL OF
MENTAL DISORDERS (DSM-IV), AND THREE OF WHOM WHO SHALL HAVE CHILDREN
DIAGNOSED WITH AN AUTISM SPECTRUM DISORDER (ASD) OR SOCIAL COMMUNICATION
DISORDER (SCD) UNDER THE FIFTH EDITION OF THE DIAGNOSTIC AND STATISTICAL
MANUAL OF MENTAL DISORDERS (DSM-5); FIVE SHALL BE REPRESENTATIVES OF
PUBLIC OR PRIVATE PROVIDERS OF SERVICES TO INDIVIDUALS WITH ASDS, AT
LEAST ONE OF WHOM SHALL BE A PSYCHIATRIST LICENSED TO PRACTICE IN THE
STATE, AT LEAST ONE OF WHOM SHALL BE A REPRESENTATIVE OF A CENTER FOR
AUTISM AND RELATED DISABILITIES LOCATED WITHIN THE STATE, AND AT LEAST
ONE OF WHOM SHALL BE ASSOCIATED WITH A SCHOOL DISTRICT OR A BOARD OF
COOPERATIVE EDUCATIONAL SERVICES; TWO SHALL BE REPRESENTATIVES OF ORGAN-
IZATIONS THAT ADVOCATE FOR INDIVIDUALS WITH ASDS; TWO SHALL BE REPRESEN-
TATIVES OF AUTHORIZED INSURERS ISSUING POLICIES PURSUANT TO ARTICLE
THIRTY-TWO OR FORTY-THREE OF THE INSURANCE LAW; AND FOUR SHALL BE THE
COMMISSIONER, THE COMMISSIONER OF EDUCATION, THE COMMISSIONER OF HEALTH,
AND THE SUPERINTENDENT OF FINANCIAL SERVICES, OR THEIR APPROPRIATE
DESIGNEES WITH SUFFICIENT AUTHORITY TO ENGAGE IN POLICY PLANNING AND
IMPLEMENTATION ON BEHALF OF THEIR AGENCIES.
(C) THE GOVERNOR SHALL APPOINT THE MEMBERS. SIX SHALL BE APPOINTED ON
THE RECOMMENDATION OF THE TEMPORARY PRESIDENT OF THE SENATE AND SIX
SHALL BE APPOINTED ON THE RECOMMENDATION OF THE SPEAKER OF THE ASSEMBLY,
EACH OF WHOM SHALL RECOMMEND THREE MEMBERS AS FOLLOWS: ONE PARENT OF A
CHILD WITH A PDD UNDER DSM-IV, ONE PARENT OF A CHILD WITH AN ASD OR SCD
UNDER DSM-5; ONE REPRESENTATIVE OF PUBLIC OR PRIVATE PROVIDERS OF
SERVICES TO INDIVIDUALS WITH ASDS.
(D) VACANCIES IN THE COUNCIL SHALL BE FILLED IN THE SAME MANNER AS
ORIGINAL APPOINTMENTS.
2. DUTIES OF THE COUNCIL SHALL INCLUDE, BUT NOT BE LIMITED TO:
(A) GATHERING STAKEHOLDER INPUT REGARDING THE IMPLEMENTATION OF DSM-5
CRITERIA, AND PROPOSED REGULATORY OR STATUTORY AMENDMENTS RELATING TO
THE TRANSITION FROM DSM-IV.
(B) ASSISTING THE OFFICE, THE STATE EDUCATION DEPARTMENT, THE DEPART-
MENT OF HEALTH AND THE DEPARTMENT OF FINANCIAL SERVICES IN PROMULGATING
REGULATIONS AND GUIDANCE TO ENSURE THOSE WITH PDD DIAGNOSES UNDER DSM-IV
RECEIVE THE SAME LEGAL ENTITLEMENTS AS THOSE WITH ASD AND SCD DIAGNOSES
UNDER DSM-5.
(C) MONITORING STUDIES EVALUATING THE NEW DIAGNOSTIC CRITERIA; AS WELL
AS ANY AMENDMENTS TO, OR GUIDANCE RELATING TO, DSM-5.
(D) PROVIDING RECOMMENDATIONS FOR STATUTORY AMENDMENTS RELATING TO THE
TRANSITION TO DSM-5 FROM DSM-IV TO ENSURE THAT INDIVIDUALS WHO WOULD
QUALIFY FOR BENEFITS AND STATE SERVICES UNDER DSM-IV WOULD CONTINUE TO
QUALIFY UNDER DMS-5.
(E) PREPARE AND SUBMIT AN ANNUAL REPORT, THE FIRST OF WHICH SHALL BE
SUBMITTED NO LATER THAN OCTOBER FIRST, TWO THOUSAND FIFTEEN, TO THE
GOVERNOR AND LEGISLATURE ON THE STATUS OF THE TRANSITION TO DSM-5 FROM
DSM-IV.
3. THE COUNCIL SHALL MEET AT LEAST TWO TIMES A YEAR. SPECIAL MEETINGS
MAY BE CALLED AT THE REQUEST OF THE COMMISSIONER.
S. 5802--A 3
4. THE MEMBERS OF THE COUNCIL SHALL BE ALLOWED THEIR REASONABLE AND
NECESSARY EXPENSES INCURRED IN THE PERFORMANCE OF THEIR DUTIES HERE-
UNDER.
S 3. This act shall take effect immediately and shall expire and be
deemed repealed three years after the effective date of this act.
