Senate Bill S5397A

2019-2020 Legislative Session

Relates to information provided to patients and health care practitioners regarding sudden unexpected death in epilepsy

download bill text pdf

Archive: Last Bill Status - In Senate Committee Rules Committee

Introduced
- In Committee Assembly
- In Committee Senate
- On Floor Calendar Assembly
- On Floor Calendar Senate
- Passed Assembly
- Passed Senate
Delivered to Governor
Signed By Governor

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Actions

View Actions

Date of Action	Assembly Actions - Lowercase Senate Actions - UPPERCASE
Dec 28, 2020	committed to rules
Feb 13, 2020	advanced to third reading
Feb 12, 2020	2nd report cal.
Feb 11, 2020	1st report cal.420
Jan 16, 2020	print number 5397a
Jan 16, 2020	amend and recommit to health
Jan 08, 2020	referred to health
Apr 29, 2019	referred to health

Votes

- Feb 11, 2020 - Health Committee Vote
  S5397A
  
  Aye
  
  12
  
  Nay
  
  2
  
  Aye with Reservations
  
  1
  
  Absent
  
  0
  
  Excused
  
  0
  
  Abstained
  
  0
  - - Health Committee Vote: Feb 11, 2020
      
      aye (12)
      
      Benjamin
      
      Biaggi
      
      Carlucci
      
      Hoylman-Sigal
      
      Kaminsky
      
      Little
      
      Metzger
      
      Montgomery
      
      Ritchie
      
      Rivera
      
      Salazar
      
      Stavisky
      
      nay (2)
      
      Jacobs
      
      Ortt
      
      aye wr (1)
      
      Gallivan

Bill Amendments

Original

A (Active)

co-Sponsors

2019-S5397 - Details

See Assembly Version of this Bill:: A7807
Current Committee:: Senate Rules
Law Section:: Public Health Law
Laws Affected:: Amd §2995, add §2997-f-1, Pub Health L
Versions Introduced in 2021-2022 Legislative Session:: S67, A3298

2019-S5397 - Summary

Requires that certain information be provided to patients and health care practitioners regarding sudden unexpected death in epilepsy.

2019-S5397 - Sponsor Memo

                                
 
BILL NUMBER: S5397

SPONSOR: HOYLMAN
 
TITLE OF BILL:  An act to amend the public health law, in relation to
information provided to patients regarding sudden unexpected death in
epilepsy

 
PURPOSE OR GENERAL IDEA OF BILL:

The bill would require health care practitioners to provide patients
with epilepsy with current and evidence-based information about SUDEP
risk factors and conditions, as well as contact information for nonpro-
fit organizations that provide support services for epilepsy conditions.

 
SUMMARY OF SPECIFIC PROVISIONS:

Section 1 of the bill amends section 2995 of the Public Health Law
(Structure and definitions) by adding definitions for "health care prac-
titioner" and "Sudden unexpected death in epilepsy."

Section 2 of the bill adds a new section 2997-f-1 to the Public Health

Law (Provision of information relating to sudden unexpected death in
epilepsy) to require health care practitioners to provide their patients
who have epilepsy with information regarding sudden unexpected death in
epilepsy risk factors and conditions.

Section 2 also requires the Department of Health to provide culturally
and linguistically appropriate written information to health care prac-
titioners necessary to implement the above requirement, and to post such
information on the Department's website. It would also allow nonprofit
organizations to provide the Department with resources and contact
information which may also be added to the website.

Section 3 of the bill is the effective date.

 
JUSTIFICATION:

According to the Centers for Disease Control (CDC), sudden unexpected
death in epilepsy (SUDEP) is the cause of epilepsy-related mortality at
an annual rate of 1.16 cases per every 1,000 people with epilepsy.
Currently, SUDEP is not widely discussed between doctors and their
patients, yet the best way to prevent SUDEP is to reduce the number of
seizures suffered by a person with epilepsy as much as possible. To be
able to reduce their number of seizures, a person with epilepsy needs to
know their triggers for seizures, take their medicine on time, and know
the risk factors for SUDEP to better understand and plan for the future.

This legislation would require health care practitioners to provide
their epileptic patients with current and evidence-based information
about SUDEP and to connect them with nonprofit organizations that can
offer further assistance and support. It would also require the Depart-
ment of Health to provide information to health care practitioners to
assist with compliance and to post such information on its website,

 
LEGISLATIVE HISTORY:

None, new bill.

 
FISCAL IMPLICATIONS:
To be determined.

 
EFFECTIVE DATE:
This act shall take effect on the ninetieth day after it shall have
become a law.

2019-S5397 - Bill Text download pdf

                            
 
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   5397
 
                        2019-2020 Regular Sessions
 
                             I N  S E N A T E
 
                              April 29, 2019
                                ___________
 
 Introduced  by  Sen. HOYLMAN -- read twice and ordered printed, and when
   printed to be committed to the Committee on Health
 
 AN ACT to amend the  public  health  law,  in  relation  to  information
   provided to patients regarding sudden unexpected death in epilepsy
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. Subdivision 2 of section 2995 of the public health  law  is
 amended by adding two new paragraphs (f) and (g) to read as follows:
   (F)  "HEALTH  CARE PRACTITIONER" SHALL MEAN A PHYSICIAN, NURSE PRACTI-
 TIONER, OR PHYSICIAN ASSISTANT OR OTHER HEALTH CARE PRACTITIONER  ACTING
 WITHIN HIS OR HER LAWFUL SCOPE OF PRACTICE.
   (G)  "SUDDEN  UNEXPECTED  DEATH  IN EPILEPSY" SHALL MEAN SUDDEN, UNEX-
 PECTED DEATH IN PATIENTS WITH EPILEPSY, WITH OR WITHOUT  EVIDENCE  OF  A
 SEIZURE.
   § 2. The public health law is amended by adding a new section 2997-f-1
 to read as follows:
   §  2997-F-1.  PROVISION  OF  INFORMATION RELATING TO SUDDEN UNEXPECTED
 DEATH IN EPILEPSY. 1. ANY HEALTH CARE PRACTITIONER WHO TREATS A  PATIENT
 WITH  EPILEPSY  SHALL  PROVIDE  SUCH  PATIENT WITH THE FOLLOWING WRITTEN
 INFORMATION:
   (A) CURRENT AND EVIDENCE-BASED  INFORMATION  ABOUT  SUDDEN  UNEXPECTED
 DEATH  IN EPILEPSY RISK FACTORS AND CONDITIONS THAT HAS BEEN REVIEWED BY
 ONE OR MORE ACCREDITED MEDICAL EXPERTS AND NATIONAL  EPILEPSY  ORGANIZA-
 TIONS; AND
   (B)  CONTACT  INFORMATION  FOR  NONPROFIT  ORGANIZATIONS  THAT PROVIDE
 INFORMATION AND SUPPORT SERVICES FOR EPILEPSY CONDITIONS.
   2.(A) THE COMMISSIONER SHALL PROVIDE  WRITTEN  INFORMATION  TO  HEALTH
 CARE  PRACTITIONERS  NECESSARY  TO  IMPLEMENT  SUBDIVISION  ONE  OF THIS
 SECTION, AND SHALL POST SUCH INFORMATION ON THE DEPARTMENT'S WEBSITE.
   (B) THE COMMISSIONER SHALL ENSURE THAT SUCH INFORMATION IS  CULTURALLY
 AND LINGUISTICALLY APPROPRIATE FOR ALL RECIPIENTS.
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.

                                                            LBD11201-02-9

 S. 5397                             2
 
   (C)  ANY  LOCAL  OR  NATIONAL  ORGANIZATION THAT PROVIDES EDUCATION OR
 SERVICES RELATED TO EPILEPSY CONDITIONS MAY REQUEST THAT THE COMMISSION-
 ER INCLUDE SUCH ORGANIZATION'S INFORMATIONAL MATERIAL AND CONTACT INFOR-
 MATION ON THE DEPARTMENT'S WEBSITE. ONCE SUCH A  REQUEST  IS  MADE,  THE
 COMMISSIONER  MAY ADD THE INFORMATION TO THE DEPARTMENT'S WEBSITE AT HIS
 OR HER DISCRETION.
   § 3. This act shall take effect on the ninetieth day  after  it  shall
 have become a law.

co-Sponsors

2019-S5397A (ACTIVE) - Details

See Assembly Version of this Bill:: A7807
Current Committee:: Senate Rules
Law Section:: Public Health Law
Laws Affected:: Amd §2995, add §2997-f-1, Pub Health L
Versions Introduced in 2021-2022 Legislative Session:: S67, A3298

2019-S5397A (ACTIVE) - Summary

Requires that certain information be provided to patients and health care practitioners regarding sudden unexpected death in epilepsy.

2019-S5397A (ACTIVE) - Sponsor Memo

                                
 
BILL NUMBER: S5397A

SPONSOR: HOYLMAN
 
TITLE OF BILL:

An act to amend the public health law, in relation to information
provided to patients regarding sudden unexpected death in epilepsy

 
PURPOSE OR GENERAL IDEA OF BILL:

The bill would require health care practitioners to provide patients
with epilepsy with current and evidence-based information about SUDEP
risk factors and conditions, as well as contact information for nonpro-
fit organizations that provide support services for epilepsy conditions.

 
SUMMARY OF SPECIFIC PROVISIONS:

Section 1 of the bill amends section 2995 of the Public Health Law
(Structure and definitions) by adding definitions for "health care prac-
titioner" and "Sudden unexpected death in epilepsy."

Section 2 of the bill adds a new section 2997-f-1 to the Public Health
Law (Provision of information relating to sudden unexpected death in
epilepsy) to require health care practitioners who are treating patients
for epilepsy to provide them with information regarding sudden unex-
pected death in epilepsy risk factors and conditions, and with contact
information for nonprofit organizations that provide support for epilep-
sy conditions.

Section 2 also requires the Department of Health to provide culturally
and linguistically appropriate written information to health care prac-
titioners necessary to implement the above requirement, and to post such
information on the Department's website. It would also allow nonprofit
organizations to provide the Department with resources and contact
information which may also be added to the website.

Section 3 of the bill is the effective date.

 
JUSTIFICATION:

According to the Centers for Disease Control (CDC), sudden unexpected
death in epilepsy (SUDEP) is the cause of epilepsy-related mortality at
an annual rate of 1.16 cases per every 1,000 people with epilepsy.
Currently, SUDEP is not widely discussed between doctors and their
patients, yet the best way to prevent SUDEP is to reduce the number of
seizures suffered by a person with epilepsy as much as possible.  To be
able to reduce their number of seizures, a person with epilepsy needs to
know their triggers for seizures, take their medicine on time, and know
the risk factors for SUDEP to better understand and plan for the future.

This legislation would require health care practitioners to provide
patients they are treating for epilepsy with current and evidence-based
information about SUDEP and to connect them with nonprofit organizations
that can offer further assistance and support. It would also require the
Department of Health to provide information to health care practitioners
to assist with compliance and to post such information on its website.

 
LEGISLATIVE HISTORY:

2019: S.5397 (Hoylman) - Died in Health

 
FISCAL IMPLICATIONS:

To be determined.

 
EFFECTIVE DATE:
This act shall take effect on the ninetieth day after it shall have
become a law.

2019-S5397A (ACTIVE) - Bill Text download pdf

                            
 
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                  5397--A
 
                        2019-2020 Regular Sessions
 
                             I N  S E N A T E
 
                              April 29, 2019
                                ___________
 
 Introduced by Sens. HOYLMAN, CARLUCCI, RIVERA, SALAZAR -- read twice and
   ordered  printed, and when printed to be committed to the Committee on
   Health -- recommitted to the Committee on Health  in  accordance  with
   Senate  Rule  6, sec. 8 -- committee discharged, bill amended, ordered
   reprinted as amended and recommitted to said committee

 AN ACT to amend the  public  health  law,  in  relation  to  information
   provided to patients regarding sudden unexpected death in epilepsy
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. Subdivision 2 of section 2995 of the public health  law  is
 amended by adding two new paragraphs (f) and (g) to read as follows:
   (F)  "HEALTH  CARE PRACTITIONER" SHALL MEAN A PHYSICIAN, NURSE PRACTI-
 TIONER, OR PHYSICIAN ASSISTANT LICENSED OR CERTIFIED PURSUANT  TO  TITLE
 EIGHT OF THE EDUCATION LAW.
   (G)  "SUDDEN  UNEXPECTED  DEATH  IN EPILEPSY" SHALL MEAN SUDDEN, UNEX-
 PECTED DEATH IN PATIENTS WITH EPILEPSY, WITH OR WITHOUT  EVIDENCE  OF  A
 SEIZURE.
   § 2. The public health law is amended by adding a new section 2997-f-1
 to read as follows:
   §  2997-F-1.  PROVISION  OF  INFORMATION RELATING TO SUDDEN UNEXPECTED
 DEATH IN EPILEPSY. 1. ANY HEALTH CARE PRACTITIONER  WHO  IS  TREATING  A
 PATIENT  FOR  EPILEPSY, WHO HAS PRIMARY RESPONSIBILITY FOR THE TREATMENT
 AND CARE OF THE PATIENT,  SHALL PROVIDE SUCH PATIENT WITH THE  FOLLOWING
 WRITTEN INFORMATION:
   (A)  CURRENT  AND  EVIDENCE-BASED  INFORMATION ABOUT SUDDEN UNEXPECTED
 DEATH IN EPILEPSY RISK FACTORS AND CONDITIONS THAT HAS BEEN REVIEWED  BY
 ONE  OR  MORE ACCREDITED MEDICAL EXPERTS AND NATIONAL EPILEPSY ORGANIZA-
 TIONS; AND
   (B) CONTACT  INFORMATION  FOR  NONPROFIT  ORGANIZATIONS  THAT  PROVIDE
 INFORMATION AND SUPPORT SERVICES FOR EPILEPSY CONDITIONS.
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD11201-05-0

 S. 5397--A                          2
 
   2.(A)  THE  COMMISSIONER  SHALL  PROVIDE WRITTEN INFORMATION TO HEALTH
 CARE PRACTITIONERS  NECESSARY  TO  IMPLEMENT  SUBDIVISION  ONE  OF  THIS
 SECTION, AND SHALL POST SUCH INFORMATION ON THE DEPARTMENT'S WEBSITE.
   (B)  THE COMMISSIONER SHALL ENSURE THAT SUCH INFORMATION IS CULTURALLY
 AND LINGUISTICALLY APPROPRIATE FOR ALL RECIPIENTS.
   (C) ANY LOCAL OR NATIONAL  ORGANIZATION  THAT  PROVIDES  EDUCATION  OR
 SERVICES RELATED TO EPILEPSY CONDITIONS MAY REQUEST THAT THE COMMISSION-
 ER INCLUDE SUCH ORGANIZATION'S INFORMATIONAL MATERIAL AND CONTACT INFOR-
 MATION  ON  THE  DEPARTMENT'S  WEBSITE. ONCE SUCH A REQUEST IS MADE, THE
 COMMISSIONER MAY ADD THE INFORMATION TO THE DEPARTMENT'S WEBSITE AT  HIS
 OR HER DISCRETION.
   §  3.  This  act shall take effect on the ninetieth day after it shall
 have become a law.

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Senate Bill S5397A

Sponsored By

Archive: Last Bill Status - In Senate Committee Rules Committee

Actions

Votes

Feb 11, 2020 - Health Committee Vote

Health Committee Vote: Feb 11, 2020

Bill Amendments

co-Sponsors

2019-S5397 - Details

2019-S5397 - Summary

2019-S5397 - Sponsor Memo

2019-S5397 - Bill Text download pdf

co-Sponsors

2019-S5397A (ACTIVE) - Details

2019-S5397A (ACTIVE) - Summary

2019-S5397A (ACTIVE) - Sponsor Memo

2019-S5397A (ACTIVE) - Bill Text download pdf

Comments

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Sponsored By

Brad Hoylman-Sigal

Archive: Last Bill Status - In Senate Committee Rules Committee

Actions

Votes

Bill Amendments

co-Sponsors

David Carlucci

Gustavo Rivera

Julia Salazar

2019-S5397 - Details

2019-S5397 - Summary

2019-S5397 - Sponsor Memo

2019-S5397 - Bill Text download pdf

co-Sponsors

David Carlucci

Gustavo Rivera

Julia Salazar

2019-S5397A (ACTIVE) - Details

2019-S5397A (ACTIVE) - Summary

2019-S5397A (ACTIVE) - Sponsor Memo

2019-S5397A (ACTIVE) - Bill Text download pdf

Comments