NY State Senate Bill 2021-S9364

Archive: Last Bill Status - In Senate Committee Health Committee

Introduced
- In Committee Assembly
- In Committee Senate
- On Floor Calendar Assembly
- On Floor Calendar Senate
- Passed Assembly
- Passed Senate
Delivered to Governor
Signed By Governor

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	Assembly Actions - Lowercase Senate Actions - UPPERCASE
May 20, 2022	referred to health

2021-S9364 (ACTIVE) - Details

Current Committee:: Senate Health
Law Section:: Public Health Law
Laws Affected:: Amd §§2500-a & 206, add §§2500-l & 3055, Pub Health L; add §§3001-e & 924, Ed L; amd §840, add §214-h, Exec L
Versions Introduced in 2023-2024 Legislative Session:: S6530

2021-S9364 (ACTIVE) - Summary

Enacts Paige's law to provide education and awareness regarding brain arteriovenous malformation and brain aneurysms, as well as information on being a potential carrier of hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome and related disorders and genetic testing for such conditions and disorders.

2021-S9364 (ACTIVE) - Sponsor Memo

                                 
BILL NUMBER: S9364

SPONSOR: MATTERA
 
TITLE OF BILL:

An act to amend the public health law, the education law and the execu-
tive law, in relation to enacting Paige's law

 
PURPOSE:

To set the standards for proper screening and training for the detection
of arteriovenous malformation.

 
SUMMARY:

Section 1: This act shall be known and may be cited as "Paige's law"

Section 2: Adds a new paragraph k to section 2500-a of the public health
law

Section 3: adds new section 2500-1 to public health law

Section 4: amends education law by adding new section 3001-e

Section 5: section 206 of public health law is amended by adding a new
subdivision 32

Section 6: public health law is amended by adding new section 3055

Section 7: section 840 of the executive law is amended by adding a new
subdivision 7

Section 8: the executive law is amended by adding a new section 214-h

Section 9: amends education law by adding a new section 924

Section 10: Effective date.

 
JUSTIFICATION:

On January 8, 2018, Paige Keely, a bright-eyed energetic, six year old
from St. James, passed away as a result of a ruptured AVM (arteriovenous
malformation). Paige went off to school that day not knowing that it
would be the last time her mother would hear her voice. Paige was eating
lunch when she went crying to the lunch aide she had a really bad head-
ache.

The school nurse called her mother immediately, since Paige was not a
"frequent flyer" at the nurse's office. The nurse told Paige's mother to
come get her. Moments later, she called her back saying they had called
an ambulance - that Paige was unresponsive. Paige vomited and began
seizing and then went unresponsive.

Paige continued to seize the whole ambulance ride and, when they arrived
at the hospital, doctors were working to resuscitate her.  Within a few
short hours, Paige lost her life to an undiagnosed Brain Arteriovenous
Malformation (AVM) like so many who have lost their life or suffered
from this "Silent Beast."

Paige's last words were "I have a really bad headache." The doctors who
worked to save her life said that Paige was born with an AVM, which is
congenital and present from birth. If the doctor's knew of the condi-
tion, they would have been likely to operate and Paige would most likely
be with us today.

Screening and training is so important to prevent what happened to Paige
from happening to another child.

 
PRIOR LEGISLATIVE HISTORY:

New bill.

 
FISCAL IMPLICATIONS:

To be determined

 
EFFECTIVE DATE:
This act shall take effect on the one hundred eightieth day after it
shall have become a law.

2021-S9364 (ACTIVE) - Bill Text download pdf

                             
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   9364
 
                             I N  S E N A T E
 
                               May 20, 2022
                                ___________
 
 Introduced  by  Sen. MATTERA -- read twice and ordered printed, and when
   printed to be committed to the Committee on Health
 
 AN ACT to amend the public health law, the education law and the  execu-
   tive law, in relation to enacting Paige's law
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:

   Section 1. Short title. This act shall be known and may  be  cited  as
 "Paige's law".
   §  2.  Subdivision  one of section 2500-a of the public health law, as
 amended by chapter 730 of the laws of 2021, is amended by adding  a  new
 paragraph (k) to read as follows:
   (K)  HEREDITARY  HEMORRHAGIC  TELANGIECTASIA AND THORACIC AORTIC ANEU-
 RYSMS AND DISSECTIONS  THROUGH  GENE  SEQUENCING,  MARFAN  SYNDROME  AND
 RELATED DISORDERS.
   §  3.  The public health law is amended by adding a new section 2500-l
 to read as follows:
   § 2500-L. HEREDITARY HEMORRHAGIC TELANGIECTASIA, THORACIC AORTIC ANEU-
 RYSMS, MARFAN SYNDROME AND RELATED DISORDERS PRENATAL  SCREENING  AWARE-
 NESS.  1.  AS  USED  IN THIS SECTION, "HEALTH CARE PRACTITIONER" MEANS A
 MEDICAL PROFESSIONAL THAT PROVIDES PRENATAL CARE.
   2. A HEALTH CARE  PRACTITIONER  CARING  FOR  A  PREGNANT  WOMAN  SHALL
 PROVIDE  TO  SUCH  WOMAN MATERIALS PROMULGATED BY THE COMMISSIONER WHICH
 INCLUDE INFORMATION ON BEING A POTENTIAL CARRIER  OF  HEREDITARY  HEMOR-
 RHAGIC  TELANGIECTASIA,  THORACIC  AORTIC ANEURYSMS, MARFAN SYNDROME AND
 RELATED DISORDERS AND THE AVAILABILITY AND OPTIONS FOR PRENATAL  SCREEN-
 ING FOR SUCH CONDITIONS AND DISORDERS.
   §  4.  The  education law is amended by adding a new section 3001-e to
 read as follows:
   § 3001-E. BRAIN ARTERIOVENOUS MALFORMATION, BRAIN ANEURYSM AND  STROKE
 AWARENESS AND RESPONSE TRAINING. 1. (A) TEACHERS SHALL ANNUALLY COMPLETE
 A  COURSE  OR  TRAINING IN THE IDENTIFICATION OF AND RESPONSE TO A PUPIL
 EXPERIENCING A  BRAIN  ARTERIOVENOUS  MALFORMATION,  BRAIN  ANEURYSM  OR
 STROKE.
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD15690-01-2

 S. 9364                             2
 
   (B) DOCUMENTATION SHOWING THE SUCCESSFUL COMPLETION OF THE INSTRUCTION
 REQUIRED  PURSUANT  TO  THIS  SECTION  SHALL  BE  KEPT IN SUCH TEACHER'S
 PERSONNEL FILE.
   2.  THE TRAINING REQUIRED PURSUANT TO THIS SECTION MAY BE PERFORMED BY
 THE REGISTERED NURSE AT THE SCHOOL IN WHICH THE TEACHER IS HIRED TO WORK
 OR BY A RECOGNIZED TRAINING PROGRAM APPROVED BY THE COMMISSIONER THROUGH
 ANY METHOD AVAILABLE, INCLUDING BUT NOT LIMITED TO COURSES ONLINE OR  IN
 PERSON.
   §  5.  Section 206 of the public health law is amended by adding a new
 subdivision 32 to read as follows:
   32. THE COMMISSIONER, IN CONSULTATION WITH MUNICIPAL  POLICE  TRAINING
 COUNCIL AND THE SUPERINTENDENT OF STATE POLICE, SHALL DEVELOP A TRAINING
 PROGRAM  AND  ASSOCIATED  TRAINING  MATERIALS  TO  BE GIVEN ANNUALLY, TO
 PROVIDE INSTRUCTION AND INFORMATION TO  POLICE  OFFICERS  AND  EMERGENCY
 MEDICAL  SERVICES  PERSONNEL  ON PROTOCOLS FOR THE IDENTIFICATION OF AND
 RESPONSE TO AN INDIVIDUAL EXPERIENCING A BRAIN  ARTERIOVENOUS  MALFORMA-
 TION, BRAIN ANEURYSM OR STROKE.
   §  6. The public health law is amended by adding a new section 3055 to
 read as follows:
   § 3055. BRAIN ARTERIOVENOUS MALFORMATION, BRAIN  ANEURYSM  AND  STROKE
 RESPONSE  TRAINING.  THE COMMISSIONER SHALL PROVIDE THE TRAINING PROGRAM
 RELATING TO PROTOCOLS FOR THE IDENTIFICATION OF AND RESPONSE TO AN INDI-
 VIDUAL EXPERIENCING A BRAIN ARTERIOVENOUS MALFORMATION,  BRAIN  ANEURYSM
 OR  STROKE PURSUANT TO SUBDIVISION THIRTY-TWO OF SECTION TWO HUNDRED SIX
 OF THIS CHAPTER TO ALL EMERGENCY MEDICAL SERVICES  PERSONNEL  INCLUDING,
 BUT  NOT  LIMITED  TO,  FIRST RESPONDERS, EMERGENCY MEDICAL TECHNICIANS,
 ADVANCED EMERGENCY MEDICAL TECHNICIANS AND EMERGENCY VEHICLE OPERATORS.
   § 7. Section 840 of the executive law  is  amended  by  adding  a  new
 subdivision 7 to read as follows:
   7. THE COUNCIL SHALL, IN ADDITION:
   (A)  DEVELOP,  MAINTAIN  AND  DISSEMINATE,  IN  CONSULTATION  WITH THE
 COMMISSIONER OF HEALTH, WRITTEN POLICIES AND PROCEDURES CONSISTENT  WITH
 SUBDIVISION  THIRTY-TWO  OF SECTION TWO HUNDRED SIX OF THE PUBLIC HEALTH
 LAW, REGARDING PROTOCOLS FOR THE IDENTIFICATION OF AND  RESPONSE  TO  AN
 INDIVIDUAL  EXPERIENCING A BRAIN ARTERIOVENOUS MALFORMATION, BRAIN ANEU-
 RYSM OR STROKE. SUCH POLICIES AND PROCEDURES SHALL MAKE  PROVISIONS  FOR
 THE  EDUCATION  AND  TRAINING OF NEW AND VETERAN POLICE OFFICERS ON SUCH
 PROTOCOLS; AND
   (B) RECOMMEND TO THE GOVERNOR, RULES AND REGULATIONS WITH  RESPECT  TO
 THE  ESTABLISHMENT  AND  IMPLEMENTATION  ON AN ONGOING ANNUAL BASIS OF A
 TRAINING PROGRAM FOR ALL CURRENT AND NEW POLICE OFFICERS  REGARDING  THE
 POLICIES AND PROCEDURES ESTABLISHED PURSUANT TO THIS SUBDIVISION.
   §  8.  The  executive  law is amended by adding a new section 214-h to
 read as follows:
   § 214-H. BRAIN ARTERIOVENOUS MALFORMATION, BRAIN ANEURYSM  AND  STROKE
 RESPONSE  TRAINING.  THE  SUPERINTENDENT  SHALL,  FOR ALL MEMBERS OF THE
 STATE POLICE:
   1. DEVELOP, MAINTAIN AND DISSEMINATE, IN CONSULTATION WITH THE COMMIS-
 SIONER OF HEALTH, WRITTEN POLICIES AND PROCEDURES CONSISTENT WITH SUBDI-
 VISION THIRTY-TWO OF SECTION TWO HUNDRED SIX OF THE PUBLIC  HEALTH  LAW,
 REGARDING  PROTOCOLS  FOR THE IDENTIFICATION OF AND RESPONSE TO AN INDI-
 VIDUAL EXPERIENCING A BRAIN ARTERIOVENOUS MALFORMATION,  BRAIN  ANEURYSM
 OR  STROKE.  SUCH  POLICIES AND PROCEDURES SHALL MAKE PROVISIONS FOR THE
 EDUCATION AND TRAINING OF NEW AND VETERAN POLICE OFFICERS ON THE  PROTO-
 COLS FOR RESPONSE TO VICTIMS OF SUSPECTED DRUG OVERDOSE AND THE ADMINIS-
 TRATION OF OPIOID ANTAGONISTS; AND
 S. 9364                             3
 
   2.  RECOMMEND  TO  THE GOVERNOR, RULES AND REGULATIONS WITH RESPECT TO
 THE ESTABLISHMENT AND IMPLEMENTATION ON AN ONGOING  ANNUAL  BASIS  OF  A
 TRAINING  PROGRAM  FOR ALL CURRENT AND NEW POLICE OFFICERS REGARDING THE
 POLICIES AND PROCEDURES ESTABLISHED PURSUANT TO THIS SUBDIVISION.
   §  9. The education law is amended by adding a new section 924 to read
 as follows:
   § 924. BRAIN ARTERIOVENOUS MALFORMATION AND BRAIN ANEURYSM  AWARENESS.
 EACH  SCHOOL  SHALL  PROVIDE  TO  THE  PARENT OR GUARDIAN OF EVERY CHILD
 ENTERING KINDERGARTEN EDUCATIONAL MATERIALS PROMULGATED BY  THE  COMMIS-
 SIONER, IN CONSULTATION WITH THE COMMISSIONER OF HEALTH, REGARDING BRAIN
 ARTERIOVENOUS  MALFORMATION  AND BRAIN ANEURYSMS, AS WELL AS INFORMATION
 ON BEING A POTENTIAL CARRIER OF HEREDITARY  HEMORRHAGIC  TELANGIECTASIA,
 THORACIC AORTIC ANEURYSMS, MARFAN SYNDROME AND RELATED DISORDERS AND THE
 AVAILABILITY  AND  OPTIONS  FOR  GENETIC TESTING FOR SUCH CONDITIONS AND
 DISORDERS.
   § 10. This act shall take effect on  the  one  hundred  eightieth  day
 after it shall have become a law; provided, however, that if chapter 730
 of  the  laws of 2021 shall not have taken effect on or before such date
 then section two of this act shall take effect on the same date  and  in
 the  same  manner  as  such  chapter  of the laws of 2021, takes effect.
 Effective immediately, the addition, amendment and/or repeal of any rule
 or regulation necessary for the implementation of this act on its effec-
 tive date are authorized to be made and  completed  on  or  before  such
 effective date.

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Senate Bill S9364

Sponsored By

Archive: Last Bill Status - In Senate Committee Health Committee

2021-S9364 (ACTIVE) - Details

2021-S9364 (ACTIVE) - Summary

2021-S9364 (ACTIVE) - Sponsor Memo

2021-S9364 (ACTIVE) - Bill Text download pdf

Comments

Senate Bill S9364

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Sponsored By

Mario R. Mattera

Archive: Last Bill Status - In Senate Committee Health Committee

2021-S9364 (ACTIVE) - Details

2021-S9364 (ACTIVE) - Summary

2021-S9364 (ACTIVE) - Sponsor Memo

2021-S9364 (ACTIVE) - Bill Text download pdf

Comments