S T A T E O F N E W Y O R K
________________________________________________________________________
4841--A
2025-2026 Regular Sessions
I N S E N A T E
February 13, 2025
___________
Introduced by Sen. FAHY -- read twice and ordered printed, and when
printed to be committed to the Committee on Disabilities -- committee
discharged, bill amended, ordered reprinted as amended and recommitted
to said committee
AN ACT establishing the "blue-ribbon commission on the future of New
York state's service delivery system for individuals with intellectual
and developmental disabilities act"; and providing for the repeal of
such provisions upon expiration thereof
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. Short title. This act shall be known and may be cited as
the "blue-ribbon commission on the future of New York state's service
delivery system for individuals with intellectual and developmental
disabilities act".
§ 2. A temporary commission, to be known as the "blue-ribbon commis-
sion on the future of New York state's service delivery system for indi-
viduals with intellectual and developmental disabilities", hereinafter
referred to as the "commission", is hereby established to conduct a
comprehensive study and prepare a report to examine, evaluate and make
recommendations for systemic reforms to ensure a sustainable set of
supports and services that meets the needs of all individuals with
intellectual and developmental disabilities.
§ 3. 1. The commission shall consist of fifteen members appointed by
the governor as follows:
(a) two members who are individuals with developmental or intellectual
disabilities; one of whom must represent a self-advocacy group for
people with intellectual and developmental disabilities;
(b) one member who is a representative of organized labor that repres-
ents a facility operated by the office for people with developmental
disabilities;
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD02956-04-5
S. 4841--A 2
(c) one member who is a representative of a provider agency that is
certified by the office for people with developmental disabilities;
(d) one member who is a not-for-profit housing developer with experi-
ence building a supervised living facility or a supportive living facil-
ity as such terms are defined in section 1.03 of the mental hygiene law,
or a group home operated by a provider agency certified by the office
for people with developmental disabilities;
(e) one member who is a representative of an organization established
by section forty-four hundred three-g of the public health law;
(f) one member who is a direct support professional certified by the
office for people with developmental disabilities;
(g) two members upon recommendation of the temporary president of the
senate;
(h) one member upon recommendation of the minority leader of the
senate;
(i) two members upon recommendation of the speaker of the assembly;
(j) one member upon recommendation of the minority leader of the
assembly;
(k) one member who is the commissioner of the office for people with
developmental disabilities or such commissioner's designee; and
(l) one member who is the chief disability officer or such chief disa-
bility officer's designee.
2. (a) At least one-third of the membership of the commission shall
consist of consumer representatives, including persons with develop-
mental disabilities, or their parents or guardians.
(b) At least one member shall be an immediate relative or guardian of
an individual with a developmental disability who resides or previously
resided in a community-based residential setting, or shall be an indi-
vidual with a developmental disability who resides or previously resided
in a community-based residential setting.
3. The commissioner of the office for people with developmental disa-
bilities shall serve as the chair of the commission. Additionally, the
commission shall elect a vice-chair and a secretary from amongst its
members. Vacancies in the membership of the commission and among its
officers shall be filled in the manner provided for original appoint-
ments.
4. The members of the commission shall receive no compensation for
their services, but shall be allowed their actual and necessary expenses
incurred in the performance of their duties hereunder.
§ 4. The study shall examine systemic reforms to ensure a sustainable
set of supports and services that meets the evolving needs of all indi-
viduals with intellectual and developmental disabilities, including but
not limited to:
1. solutions to address the recruitment and retention of the direct
care workforce;
2. access to person centered supports and services that reduce racial
and socio-economic inequities and disparities and anticipates changing
demographics of the population;
3. technology and infrastructure needs, including potential future
needs and uses to improve effectiveness of the service system;
4. the evolving service needs of individuals with intellectual and
developmental disabilities, especially those with co-occurring behav-
ioral health needs and other cross-systems issues;
5. evolving housing needs and opportunities, that support the state's
Olmstead plan and independent living in community-based settings;
S. 4841--A 3
6. increasing competitive, integrated employment for individuals with
intellectual and developmental disabilities.
§ 5. Not later than fifteen months after the effective date of this
act, the commission shall prepare and submit to the governor, the tempo-
rary president of the senate and the speaker of the assembly a report of
the study's findings, together with specific recommendations for system-
ic reforms to ensure a sustainable set of supports and services that
meets the needs of all individuals with intellectual and developmental
disabilities.
§ 6. This act shall take effect immediately and shall expire and be
deemed repealed two years after it shall have become a law.